• 1
    Ries LAG, Eisner MP, Kosary CL, et al. SEER Cancer Statistics Review, 1973–1999. 2002. Bethesda, MD: National Cancer Institute.
  • 2
    Villeneuve PJ, Raman S, Leclerc JM, Huchcroft S, Dryer D, Morrison H. Survival rates among Canadian children and teenagers with cancer diagnosed between 1985 and 1988. Cancer Prev Control. 1998; 2: 1522.
  • 3
    Childhood cancer survivorship: improving care and quality of life. Washington, DC: National Academies Press, 2003.
  • 4
    Green DM. Late effects of treatment for cancer during childhood and adolescence. Curr Probl Cancer. 2003; 27: 127142.
  • 5
    Bottomley SJ, Kassner E. Late effects of childhood cancer therapy. J Pediatr Nurs. 2003; 18: 126313.
  • 6
    Sklar CA. Overview of the effects of cancer therapies: the nature, scale and breadth of the problem. Acta Paediatr Suppl. 1999; 88: 14.
  • 7
    Oeffinger KC, Eshelman DA, Tomlinson GE, Buchanan GR, Foster BM. Grading of late effects in young adult survivors of childhood cancer followed in an ambulatory adult setting. Cancer. 2000; 88: 16871695.
  • 8
    Oeffinger KC, Hudson MM. Long-term complications following childhood and adolescent cancer: foundations for providing risk-based health care for survivors. CA Cancer J Clin. 2004; 54: 208236.
  • 9
    Wallace WH, Blacklay A, Eiser C, et al. Developing strategies for long term follow up of survivors of childhood cancer. Br Med J. 2001; 323: 271274.
  • 10
    Landier W, Bhatia S, Eshelman DA, et al. Development of risk-based guidelines for pediatric cancer survivors: the Children's Oncology Group long-term follow-up guidelines from the Children's Oncology Group Late Effects Committee and Nursing Discipline. J Clin Oncol. 2004; 22: 49794990.
  • 11
    Zebrack BJ, Eshelman DA, Hudson MM, et al. Health care for childhood cancer survivors: insights and perspectives from a Delphi panel of young adult survivors of childhood cancer. Cancer. 2004; 100: 843850.
  • 12
    Taylor A, Hawkins M, Griffiths A, et al. Long-term follow-up of survivors of childhood cancer in the UK. Pediatr Blood Cancer. 2004; 42: 161168.
  • 13
    Bleyer WA, Smith RA, Green DM, et al. American Cancer Society workshop on adolescents and young adults with cancer. Workgroup #1: long-term care and lifetime follow-up. Cancer. 1993; 71: 2413.
  • 14
    Arceci RJ, Reaman GH, Cohen AR, Lampkin BC. Position statement for the need to define pediatric hematology/oncology programs: a model of subspecialty care for chronic childhood diseases. Health Care Policy and Public Issues Committee of the American Society of Pediatric Hematology/Oncology. J Pediatr Hematol Oncol. 1998; 20: 98103.
  • 15
    Guidelines for the pediatric cancer center and role of such centers in diagnosis and treatment. American Academy of Pediatrics Section Statement Section on Hematology/Oncology. Pediatrics. 1997; 99: 139141.
  • 16
    Children's Oncology Group. Long-term follow-up guidelines for survivors of childhood, adolescent, and young adult cancers. Version 1.2, 2004. Available from URL: [accessed October 2005].
  • 17
    Gibbons L, Mao Y, Levy IG, Miller AB. The Canadian Childhood Cancer Control Program. Can Med Assoc J. 1994; 151: 17041709.
  • 18
    Shaw AK, Morrison HI, Speechley KN, et al. The late effects study: design and subject representativeness of a Canadian, multi-centre study of late effects of childhood cancer. Chronic Dis Can. 2004; 25: 119126.
  • 19
    Ontario Ministry of Health. Ontario Health Survey 1990. User's Guide, Micro Data Manual, vol. 2. Toronto, 1993.
  • 20
    Robison LL, Mertens AC, Boice JD, et al. Study design and cohort characteristics of the Childhood Cancer Survivor Study: a multi-institutional collaborative project. Med Pediatr Oncol. 2002; 38: 229239.
  • 21
    Coddington RD. The significance of life events as etiologic factors in the diseases of children. II. A study of a normal population. J Psychosom Res. 1972; 16: 205213.
  • 22
    Avison WR, Turner RJ. Stressful life events and depressive symptoms: disaggregating the effects of acute stressors and chronic strains. J Health Soc Behav. 1988; 29: 253264.
  • 23
    Sante Quebec, Bellerose C, Lavallee C, Chenard L, Levasseur M. Et la sante, ca va en 1992–1993. Volume I: rapport de l'Enquete sociale et de sante 1992–1993. Montreal: Ministere de la Sante et des Services sociaux, 1995.
  • 24
    Garcia Bacete FJ, Rosel RJ. Family and personal correlates of academic achievement. Psychol Rep. 2001; 88: 533547.
  • 25
    Mullis RL, Rathge R, Mullis AK. Predictors of academic performance during early adolescence: a contextual view. Int J Behav Dev. 2003; 27: 541548.
  • 26
    Davis-Kean PE. The influence of parent education and family income on child achievement: the indirect role of parental expectations and the home environment. J Fam Psychol. 2005; 19: 294304.
  • 27
    Oeffinger KC, Mertens AC, Hudson MM, et al. Health care of young adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Ann Fam Med. 2004; 2: 6170.
  • 28
    Breslow NE, Day NE. Statistical methods in cancer research. Volume 1: The analysis of case-control studies. Lyon: International Agency for Research on Cancer, 1980.
  • 29
    Mertens AC, Yasui Y, Neglia JP, et al. Late mortality experience in five-year survivors of childhood and adolescent cancer: the Childhood Cancer Survivor Study. J Clin Oncol. 2001; 19: 31633172.
  • 30
    Vaughn DJ, Meadows AT. Cancer survivorship research: the best is yet to come. J Clin Oncol. 2002; 20: 888890.
  • 31
    Kadan-Lottick NS, Robison LL, Gurney JG, et al. Childhood cancer survivors' knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study. JAMA. 2002; 287: 18321839.
  • 32
    Marwick C. Long-term effects of childhood cancer need to be documented, board says. J Natl Cancer Inst. 2003; 95: 15061507.
  • 33
    Oeffinger KC, Eshelman DA, Tomlinson GE, Buchanan GR. Programs for adult survivors of childhood cancer. J Clin Oncol. 1998; 16: 28642867.