• 1
    Houts P, Yasko JM, Kahn SB, Schelzel GW, Marconi K. Unmet psychological, social and economic needs of persons with cancer in Pennsylvania. Cancer. 1986; 58: 23552361.
  • 2
    Houts PS, Yasko JM, Harvey HA, et al. Unmet needs of persons with cancer in Pennsylvania during the period of terminal care. Cancer. 1988; 62: 627634.
  • 3
    Pasacreta JV, Barg FK, Nuamah I, McCorkle R. Caregiver characteristics prior to and four months following attendance at a family caregiver cancer education program. Cancer Nurs. 2000; 23: 295303.
  • 4
    Barg FK, Pasacreta J, Nuamah I, McCorkle R. A description of a psychoeducational intervention for family caregivers of cancer patients. J Fam Nurs. 1998; 4: 394413.
  • 5
    Barg FK, Lowe JI. A culturally appropriate cancer education program for African American adolescents in an urban middle school. J Sch Health. 1996; 66: 5054.
  • 6
    Robinson KD, Angelletti KA, Barg FK, Pasacreta JV, McCorkle R, Yasko JM. The development of a family caregiver cancer education program. J Cancer Educ. 1998; 13: 116121.
  • 7
    Barg FK, McCorkle R, Jepson C, et al. A statewide plan to address unmet psychosocial needs for persons with cancer. J Psychosoc Oncol. 1993; 10: 5577.
  • 8
    McMenamin ER, McCorkle R, Barg F, Abrahm J, Jepson C. Implementing a multidisciplinary cancer pain consultation program. Cancer Pract. 1995; 3: 303309.
  • 9
    Doorenbos AGB, Given C, Verbitsky N, Cimprich B, McCorkle R. Reducing symptom limitations: a cognitive behavioral intervention randomized trial. Psychooncology. 2005; 14: 574584.
  • 10
    Sanson-Fisher RG, Boyes A, Bonevski B, Burton L, Cook P. The unmet supportive needs of patients with cancer. Cancer. 2000; 88: 226237.
  • 11
    Soothill K, Morris SM, Harman J, Francis B, Thomas C, McIllmurray MB. The significant unmet needs of cancer patients: probing psychosocial concerns. Support Care Cancer. 2001; 9: 597605.
  • 12
    Ashing-Giwa K, Tejaro J, Kraemer J, et al. Understanding the breast cancer experience of women: a qualitative study of African American, Asian American, Latina and Caucasian survivors. Psychooncology. 2003; 13: 408428.
  • 13
    Boberg EW, Hawkins RP, Offord KP, et al. Assessing the unmet information, support and care delivery needs of men with prostate cancer. Patient Educ Couns. 2003; 49: 233242.
  • 14
    Browall M, Horvath GG. Information needs of women with recently diagnosed ovarian cancer. Eur J Oncol Nurs. 2004; 8: 200210.
  • 15
    Semple CJ, Dunwoody L, Kernohan WG. Psychosocial interventions for patients with head and neck cancer: past, present and future. Cancer Nurs. 2004; 27: 434441.
  • 16
    Shelby R, Kerner J, Coleman E, Blum D. Role of community based and philanthropic organizations in meeting cancer patient and caregiver need. CA: Cancer J Clin. 2002; 52: 229246.
  • 17
    Dudgeon DJ, Doerner K, O'Connor T, Tobin M, Rosenthal S. When does palliative care begin? A needs assessment of cancer patients with recurrent disease. J Palliat Care. 1995; 11: 59.
  • 18
    Georges JJ, van der Heide A, van der Wal G, van der Maas PJ. Symptoms, treatment and ‘dying peacefully’ in terminally ill cancer patients: a prospective study. Support Care Cancer. 2005; 13: 160168.
  • 19
    Morasso G, Viterbori P, DiLeo S, et al. Psychological and symptom distress in terminal cancer patients with met and unmet needs. J Pain Symptom Manage. 1999; 17: 402409.
  • 20
    Sharpe L, Butow P, Smith C, McConnell D, Clarke S. The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carers. Psychooncology. 2004; 14: 102114.
  • 21
    Hudson P. Positive aspects and challenges associated with caring for a dying relative at home. Int J Palliat Nurs. 2004; 10: 5865.
  • 22
    Soothill K, Morris SM, Harman JC, Francis B, Thomas C, McIllmurray MB. Informal carers of cancer patients: what are their unmet psychosocial needs? Health Soc Care Community. 2001; 9: 464475.
  • 23
    Bourjolly JN, Barg FK, Hirschman KB. African American and white women's appraisal of their breast cancer. J Psychosocial Oncol. 2003; 21: 4361.
  • 24
    Clarke CA, West DW, Edwards BK, Figgs LW, Kerner J, Schwartz AG. Existing data on breast cancer in African American women: what we know and what we need to know. Cancer. 2003; 97( 1 suppl): 211221.
  • 25
    Ell K, Vourlekis B, Lee PJ, Dwight-Johnson M, et al. Depression, correlates of depression, and receipt of depression care among low-income women with breast cancer or gynecological cancer. J Clin Oncol. 2005; 23: 30523060.
  • 26
    Girgis A, Sanson-Fisher RW, Burrows A. Perceived needs of women diagnosed with breast cancer: rural vs. urban location. Aust N Z J Public Health. 2000; 24: 166173.
  • 27
    Hewitt M, Greenfield S, Stovall E. From Cancer Patient to Cancer Survivor: Lost in Transition. Washington, DC: National Academies Press; 2006.
  • 28
    Klemm P, Wheeler E. Cancer caregivers online: hope, emotional roller coaster, and physical/emotional/psychological responses. Comput Inform Nurs. 2005; 23: 3845.
  • 29
    Lieberman MA, Goldstein BA. Self-help on‒line: an outcome evaluation of breast cancer bulletin boards. J Health Psychol. 2005; 10: 855862.
  • 30
    Owen JE, Klapow JC, Roth DL, Nabell L, Tucker DC. Improving the effectiveness of adjuvant psychological treatment for women with breast cancer: the feasibility of providing online support. Psychooncology. 2004; 13: 281292.
  • 31
    Bowen DJ, Burke W, McTiernan A, Yasui Y, Andersen MR. Breast cancer risk counseling improves women's functioning. Patient Educ Couns. 2004; 53: 7986.
  • 32
    Eng TR, Maxfield A, Patrick K, Deering MJ, Ratzan SC, Gustafson DH. Access to health information and support: a public highway or a private road? JAMA. 1998; 280: 13711375.
  • 33
    LaCoursiere SP. A theory of online social support. ANS Adv Nurs Sci. 2001; 24: 6077.
  • 34
    Foley K, Gelband H. Improving Palliative Care for Cancer. Washington, DC: Institute of Medicine, National Academies Press; 2001.
  • 35
    Guidry JJ, Torrence W, Herbelin S. Closing the divide: diverse populations and cancer survivorship. Cancer. 2005; 104( 11 suppl): 25772583.
  • 36
    Bastani R, Kaplan CP, Maxwell AE, Nisenbaum R, Pearce J, Marcus AC. Initial and repeat mammography screening in a low income multi‒ethnic population in Los Angeles. Cancer Epidemiol Biomarkers Prev. 1995; 4: 161167.
  • 37
    Bloom JR, Grazier K, Hodge F, Hayes WA. Factors affecting the use of screening mammography among African American women. Cancer Epidemiol Biomarkers Prev 1991; 1: 7282.
  • 38
    Caplan L, May D, Richardson L. Time to diagnosis and treatment of breast cancer: results from the National Breast and Cervical Cancer Early Detection Program, 1991–1995. Am J Public Health. 2000; 90: 130134.
  • 39
    Farrow DC, Hunt WC, Samet JM. Geographic variation in the treatment of localized breast cancer. N Engl J Med. 1992; 326: 10971101.
  • 40
    Hunter CP. Epidemiology, stage at diagnosis, and tumor biology of breast carcinoma in multiracial and multiethnic populations. Cancer. 2000; 88( 5 suppl): 11931202.
  • 41
    Krieger N. Discrimination and health. In: BerkmanLF, KawachiI, editors. Social Epidemiology. Oxford, UK: Oxford University Press; 2000: 3675.
  • 42
    Kwok RK, Yankaskas BC. The use of census data for determining race and education as SES indicators: a validation study. Ann Epidemiol. 2001; 11: 171177.
  • 43
    Rockhill B, Weinberg CR, Newman B. Population attributable fraction estimation for established breast cancer risk factors: considering the issues of high prevalence and unmodifiability. Am J Epidemiol. 1998; 147: 826833.
  • 44
    Chamberlain D, Mutaner C, Walrath C, Nickerson KJ, LaVeist TA, Leaf PJ. Racial differences in attitude toward professional mental health care and in the use of services. In: LaVeistTA, editor. Race, Ethnicity and Health. San Francisco: Jossey-Bass; 2002: 591606.
  • 45
    Holland JC, Reznik I. Pathways for psychosocial care of cancer survivors. Cancer. 2005; 104( 11 suppl): 26242637.
  • 46
    Stanton AL, Ganz PA, Rowland JH, Myerowitz BE, Krupnick JL, Sears SR. Promoting adjustment after treatment for cancer. Cancer. 2005; 104( 11 suppl): 26082613.
  • 47
    Lawton MP, Moss M, Fulcomes M, Kleban MH. A research and service oriented multi-level assessment instrument. J Gerontol. 1982; 37: 9199.
  • 48
    Pennsylvania Department of Health. Cancer Facts and Figures: Pennsylvania 2005. Harrisburg, PA: Bureau of Health Statistics; 2005.
  • 49
    Velde AT, Sprangers MA, Aaronson NK. Feasibility, psychometric performance, and stability across modes of administration of the CARES-SF. Ann Oncol. 1996; 7: 381390.
  • 50
    Gano-Phillips S, Fincham FD. Assessing marriage via telephone interviews and written questionnaires: a methodological note. J Marriage Fam. 1992; 54: 630635.
  • 51
    Kwon S, Visco AG, Fitzgerald MP, Ye W, Whitehead WE. Validityand reliability of the modified Manchester Health Questionnaire in assessing patients with fecal incontinence. Dis Colon Rectum. 2005; 48: 323331.
  • 52
    Bowling A. Mode of questionnaire administration can have serious effects on data quality. J Public Health. 2005; 27: 281291.
  • 53
    Holm S. A simple sequentially rejective multiple test procedure. Scand J Stat 1979; 6: 6570.
  • 54
    Aiken LS, West SG. Multiple Regression: Testing and Interpreting Interactions. Newbury Park, CA: Sage; 1991.
  • 55
    Keddem S. Mapping Cancer Resources and Unmet Psychosocial Needs PAC3. Harrisburg, PA: Pennsylvania Association of Comprehensive Cancer Centers; 2006.
  • 56
    Mosher CE, Danoff-Burg S. A review of age differences in psychological adjustment to breast cancer. J Psychosoc Oncol. 2005; 23: 101114.
  • 57
    Kurtz ME, Kurtz JC, Stommel M, Given CW, Given B. The influence of symptoms, age, comorbidity, and cancer site on physical functioning and mental health of geriatric women patients. Women Health. 1999; 29: 112.
  • 58
    Penedo FJ, Dahn JR, Shen B-J, Scheiderman N, Antoni MH. Ethnicity and determinants of quality of life after prostate cancer treatment. Urology. 2006; 67: 10221027.