Fax: (505) 248-4393
Supplement
Methods for improving cancer surveillance data in American Indian and Alaska Native populations†‡§
Article first published online: 20 AUG 2008
DOI: 10.1002/cncr.23724
Published 2008 American Cancer Society
Issue
1097-0142/asset/cover.gif?v=1&s=a7299bc18f075294c232ade468773cd0672bd470)
Cancer
Supplement: An Update on Cancer in American Indians and Alaska Natives, 1999–2004
Volume 113, Issue Supplement 5, pages 1120–1130, 1 September 2008
Additional Information
How to Cite
Espey, D. K., Wiggins, C. L., Jim, M. A., Miller, B. A., Johnson, C. J. and Becker, T. M. (2008), Methods for improving cancer surveillance data in American Indian and Alaska Native populations. Cancer, 113: 1120–1130. doi: 10.1002/cncr.23724
- †
This supplement was sponsored by Cooperative Agreement Number U50 DP424071-04 from the Centers for Disease Control and Prevention, Division of Cancer Prevention and Control.
- ‡
The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention.
- §
This article is a U.S. Government work and, as such, is in the public domain in the United States of America.
Publication History
- Issue published online: 20 AUG 2008
- Article first published online: 20 AUG 2008
- Manuscript Accepted: 3 JUN 2008
- Manuscript Received: 5 MAY 2008
REFERENCES
- 1U.S. Cancer Statistics Working Group. United States Cancer Statistics: 2003 Incidence and Mortality. Atlanta, Ga: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, and National Cancer Institute; 2006.
- 2,,,,,. Cancer surveillance research: a vital subdiscipline of cancer epidemiology. Cancer Causes Control. 2005; 16: 1009–1019.
- 3,,. Racial misclassification of Native Americans in a Surveillance, Epidemiology, and End Results cancer registry. J Natl Cancer Inst. 1992; 84: 957–962.
- 4
- 5,,,. Improving American Indian cancer data in the California Cancer Registry by linkage with the Indian Health Service. J Registry Manage. 1998; 25: 17–20.
- 6,,,,,. Improving cancer incidence estimates for American Indians in Minnesota. Am J Public Health. 1999; 89: 1673–1677.
- 7,,, et al. Improving cancer incidence estimates for American Indians and Alaska Natives in the Pacific Northwest. Am J Public Health. 2002; 92: 1469–1471.
- 8,,,,. Cancer incidence in Montana: rates for American Indians exceed those for whites. Am J Prev Med. 2006; 30: 493–497.
- 9,,,. Differences in cancer incidence among Indians in Alaska and New Mexico and U.S. whites, 1993-2002. Cancer Epidemiol Biomarkers Prev. 2006; 15: 1515–1519.
- 10,,, et al. Annual report to the nation on the status of cancer, 1975-2004, featuring cancer in American Indians and Alaska Natives. Cancer. 2007; 110: 2119–2152.Direct Link:
- 11,. Patterns of cancer mortality among Native Americans. Cancer. 1998; 83: 2377–2383.Direct Link:
- 12,,. Regional patterns and trends in cancer mortality among American Indians and Alaska Natives, 1990-2001. Cancer. 2005; 103: 1045–1053.Direct Link:
- 13National Cancer Institute. Surveillance, Epidemiology, and End Results (SEER) Program. Statistical Resources. U.S. Population Data 1969-2004. Available at: http://seer.cancer.gov/resources. Accessed on July 11, 2008.
- 14. We the People: American Indians and Alaska Natives in the United States: Census 2000 Special Reports (CENSR-28, vol. 2007). Washington, DC: U.S. Census Bureau; 2006.
- 15Seattle Indian Health Board—Urban Indian Health Institute. The Health Status of Urban American Indians and Alaska Natives: An Analysis of Select Vital Records and Census Data Sources 2004. Seattle, Wash: Urban Indian Health Institute, Seattle Indian Health Board; 2004. Available at: www.uihi.net/Public%20Documents1/UIHI%20Publications/2004HealthStatusReport.pdf. Accessed on May 15, 2007.
- 16IHS. Indian Health Service Fact Sheet. Available at: http://www.ihs.gov/PublicInfo/PublicAffairs/Welcome_Info/ThisFacts.asp, 2006. Accessed May 8, 2007.
- 17,,. Future public health delivery models for Native American tribes. Public Health. 2007; 121: 296–307.
- 18,,. Issues in cancer data and surveillance for American Indian and Alaska Native populations. J Registry Manage. 1999; 26: 153–157.
- 19National Cancer Institute: The National Cancer Act of 1971, Public Law No. 92-218, Stat. 1828, (December 23, 1971). Available at: http://www.cancer.gov/legis/1971canc.html. Accessed on July 11, 2008.
- 20,,. The Surveillance, Epidemiology, and End Results Program: a national resource. Cancer Epidemiol Biomarkers Prev. 1999; 8: 1117–1121.
- 21Centers for Disease Control and Prevention. Cancer Registries Amendment Act, Public Law No. 102-515, Stat. 3312 (October 22, 1992). Available at: http://www.cdc.gov/cancer/npcr/npcrpdfs/publaw.pdf. Accessed on July 11, 2008.
- 22,,,,,. Cancers of the urinary tract among American Indians and Alaska Natives in the United States, 1999-2004. Cancer. 2008; 113( 5 suppl): 1213–1224.Direct Link:
- 23,,, et al. Cancer among American Indians and Alaska Natives in the United States, 1999-2004. Cancer. 2008; 113( 5 suppl): 1142–1152.Direct Link:
- 24,,, et al. Breast cancer incidence among American Indian and Alaska Native Women: US, 1999-2004. Cancer. 2008; 113( 5 suppl): 1191–1202.Direct Link:
- 25,,. International Classification of Diseases for Oncology. Geneva, Switzerland: World Health Organization; 2000.
- 26,,, et al. SEER Cancer Statistics Review, 1975-2004 (based on the November 2006 submission, posted to the SEER website in 2007). Bethesda, Md: National Cancer Institute; 2007. Available at: http://seer.cancer.gov/csr/1975_2004/. Accessed on July 11, 2008.
- 27,,, et al. Lung cancer incidence among American Indians and Alaska Natives in the United States, 1999-2004. Cancer. 2008; 113( 5 suppl): 1168–1178.Direct Link:
- 28,,,. Cancer in American Indian and Alaska Native young adults (ages 20-44 years): 1999-2004. Cancer. 2008; 113( 5 suppl): 1153–1167.Direct Link:
- 29,,, et al. Gastric cancer among American Indians and Alaska Natives in the US, 1999-2004. Cancer. 2008; 113( 5 suppl): 1225–1233.Direct Link:
- 30,,,,. Racial Misclassification of American Indians Residing Near IHS Facilities: Poster P-47, Final Program and Abstracts. Presented at the 2006 North American Association of Central Cancer Registries Annual Conference, Regina, Saskatchewan, Canada, June 10-16, 2006.
- 31,,. Cancer Mortality Among American Indians and Alaska Natives: Regional Differences, 1994-1998. Rockville, Md: Indian Health Service; 2003.
- 32,,. Surveillance for health behaviors of American Indians and Alaska Natives. Findings from the Behavioral Risk Factor Surveillance System, 1997-2000. MMWR Surveill Summ. 2003; 52: 1–13.
- 33Indian Health Service. Area Offices and Facilities. Available at: http://www.ihs.gov/FacilitiesServices/AreaOffices/AreaOffices_index.asp, 2003. Accessed May 20, 2007.
- 34Office of Management and Budget. Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. Federal Register Notice: October 30, 1997. Available at: http://www.whitehouse.gov/omb/fedreg/1997standards.html 1997. Accessed on July 11, 2008.
- 35United States Census Bureau. Racial and Ethnic Classifications Used in Census 2000 and Beyond. Available at: http://www.census.gov/population/www/socdemo/race/racefactcb.html. Accessed on July 11, 2008
- 36
- 37National Center for Chronic Disease Prevention and Health Promotion. Link Plus: A Suite of Publicly Available Software Programs for Collecting and Processing Cancer Registry Data. Atlanta Ga: Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, U.S. Department of Health and Human Services; 2005. Available at: http://www.cdc.gov/cancer/npcr/tools/registryplus/lp.htm. Accessed on July 11, 2008.
- 38,. Standards for Cancer Registries, Volume III: Data Standards and Data Dictionary, 10th ed, Version 11. Springfield, Ill: North American Association of Central Cancer Registries; 2004.
- 39JohnsonCH, ed. SEER Program Coding and Staging Manual 2004, Revision 1. NIH Publication No. 04-5581. Bethesda, Md: National Cancer Institute; 2004. Available at: http://seer.cancer.gov/seerstat/variables/seer/yr1973_2003/race_ethnicity/. Accessed on July 11, 2008.
- 40North American Association of Central Cancer Registries (NAACCR) Latino Research Work Group. NAACCR Guideline for Enhancing Hispanic/Latino Identification: Revised NAACCR Hispanic/Latino Identification Algorithm [NHIA v2]. Springfield, Ill: North American Association of Central Cancer Registries; 2005.
- 41U.S. Census Bureau. Population Estimates Methodology. Washington, DC: Bureau of the Census. Available at: http://www.census.gov/popest/topics/methodology/. Accessed on July 11, 2008.
- 42,,,,,. Bridging between 2 standards for collecting information on race and ethnicity: an application to Census 2000 and vital rates. Public Health Rep. 2004; 119: 192–205.
- 43,. From single-race reporting to multiple-race reporting: using imputation methods to bridge the transition. Stat Med. 2003; 22: 1571–1587.Direct Link:
- 44Surveillance Research Program. SEER*Stat software. Bethesda, Md: National Cancer Institute, DCCPS, Surveillance Research Program, Cancer Statistics Branch; 2007. Available at: http://www.seer.cancer.gov/seerstat. Accessed on July 11, 2008
- 45
- 46,. Age standardization of death rates: implementation of the year 2000 standard. Natl Vital Stat Reps. 1998; 47: 1–16.
- 47,,. Efficient interval estimation for age-adjusted cancer rates. Stat Methods Med Res. 2006; 15: 547–569.
- 48YoungJL,RoffersSD,RiesLAG,FritzAG,HurlbutAA, eds. SEER Summary Staging Manual—2000: Codes and Coding Instructions. NIH Publication No. 01-4969. Bethesda, Md: National Cancer Institute; 2001.
- 49,,,,. Site-Specific Comparison of Summary Stage 1977 and Summary Stage 2000 Coding. Springfield, Ill: North American Association of Central Cancer Registries; 2005.
- 50,. Cancer rates among American Indians and Alaska Natives: is there a national perspective? Cancer. 2003; 98: 1262–1272.Direct Link:
- 51
- 52,,. Measuring the health status gap for American Indians/Alaska Natives: getting closer to the truth. Am J Public Health. 2005; 95: 838–843.
- 53,,,,. Surveillance for health behaviors of American Indians and Alaska Natives—findings from the Behavioral Risk Factor Surveillance System, 2000-2006. Cancer. 2008; 113( 5 suppl); 1131–1141.Direct Link:
- 54Urban Indian Health Institute, Seattle Indian Health Board. Reported Health and Health-influencing Behaviors Among Urban American Indians and Alaska Natives: An Analysis of Data Collected by the Behavioral Risk Factor Surveillance System. Seattle, Wash: Urban Indian Health Institute, Seattle Indian Health Board; 2008.
- 55,. Obtaining data on patient race, ethnicity, and primary language in healthcare organizations: current challenges and proposed solutions. Health Serv Res. 2006; 41(4 pt 1): 1501–1518.
- 56,,,,,. Accuracy of race coding on American Indian death certificates, Montana 1996-1998. Public Health Rep. 2002; 117: 44–49.
- 57,,, et al. Quality of death rates by race and Hispanic origin: a summary of current research, 1999. Vital Health Stat 2. 1999; 128: 1–13.

1097-0142/asset/olbannerleft.gif?v=1&s=ca681f5719430b26e1bc15e9ea4c9fc0a7110104)
1097-0142/asset/olbannerright.gif?v=1&s=8142566facf7e76aef9be6c51162a2e920b3b9f9)