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REFERENCES

  • 1
    Epstein RM, Street RL Jr. Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering. National Cancer Institute. NIH Publication No. 07-6225. Bethesda, MD: National Institutes of Health; 2007.
  • 2
    Thorne SE, Robinson CA. Health care relationships: the chronic illness perspective. Res Nurs Health. 1988;11:293300.
  • 3
    Street RL Jr, Gordon HS, Ward MM, Krupat E, Kravitz RL. Patient participation in medical consultations: why some patients are more involved than others. Med Care. 2005;43:960969.
  • 4
    Street RL Jr, Makoul G, Arora NK, Epstein RM. How does communication heal? Pathways linking clinician-patient communication to health outcomes. Patient Educ Couns. 2009;74:295301.
  • 5
    Coulter A. Patient information and shared decision-making in cancer care. Br J Cancer. 2003;89:S15S16.
  • 6
    Luker KA, Beaver K, Leinster SJ, Owens RG, Degner LF, Sloan JA. The information needs of women newly diagnosed with breast cancer. J Adv Nurs. 2003;22:134141.
  • 7
    Dow KH, Ferrell BR, Haberman MR, Eaton L. The meaning of quality of life in cancer survivorship. Oncol Nurs Forum. 1999;26:519528.
  • 8
    Robb C, Haley WE, Balducci L, et al. Impact of breast cancer survivorship on quality of life in older women. Crit Rev Oncol Hematol. 2007;62:8491.
  • 9
    Woolf SH, Chan EC, Harris R, et al. Promoting informed choice: transforming health care to dispense knowledge for decision making. Ann Intern Med. 2005;143:293300.
  • 10
    Anderson R, Rice R, et al. Changing the US Health Care System. New York: John Wiley & Sons; 2007.
  • 11
    Ferrell BR, Grant M, Funk B, Otis-Green S, Garcia N. Quality of life in breast cancer. Cancer Pract. 1996;4:331340.
  • 12
    Dubenske LL, Gustafson DH, Shaw BR, Cleary JF. Web-based cancer communication and decision making systems: connecting patients, caregivers, and clinicians for improved health outcomes. J Med Decis Making. 2010;30:732744.
  • 13
    Hodgkinson K, Butow P, Hunt GE, Pendlebury S, Hobbs KM, Wain G. Breast cancer survivors' supportive care needs 2-10 years after diagnosis. Support Care Cancer. 2007;15:515523.
  • 14
    Hodgkinson K, Butow P, Fuchs A, et al. Long-term survival from gynecologic cancer: psychosocial outcomes, supportive care needs and positive outcomes. Gynecol Oncol. 2007;104:381389.
  • 15
    Degner LF, Kristjanson LJ, Bowman D, et al. Informational needs and decisional preferences in women with breast cancer. JAMA. 1997;277:14851492.
  • 16
    Beaver K, Luker KA, Owens RG, Leinster SJ, Degner LF, Sloan JA. Treatment decision making in women newly diagnosed with breast cancer. Cancer Nurs. 1996;19:819.
  • 17
    Hack TF, Degner LF, Watson P, Sinha L. Do patient benefit from participating in medical decision making? Longitudinal follow-up of women with breast cancer. Psychooncology. 2006;15:919.
  • 18
    Beaver K, Booth K. Information needs and decision-making preferences: comparing findings for gynaecological, breast and colorectal cancer. Eur J Oncol Nurs. 2007;11:409416.
  • 19
    Singh JA, Sloan JA, Atherton PJ, et al. Preferred roles in treatment decision making among patients with cancer: a pooled analysis of studies using the Control Preferences Scale. Am J Manag Care. 2010;16:688696.
  • 20
    Degner LF, Sloan JA. Decision making during serious illness: what role do patients really want to play? J Clin Epidemiol. 1992;45:941950.
  • 21
    Blank TO, Bellizzi KM. After prostate cancer: predictors of well-being among long-term prostate cancer survivors. Cancer. 2006;106:21282135.
  • 22
    Bowman KF, Rose JH, Deimling GT. Appraisal of the cancer experience by family members and survivors in long-term survivorship. Psychooncology. 2006;15:834845.
  • 23
    Griggs JJ, Sorbero ME, Mallinger JB, et al. Vitality, mental health, and satisfaction with information after breast cancer. Patient Educ Couns. 2007;66:5866.
  • 24
    Smith T, Stein KD, Mehta CC, et al. The rationale, design, and implementation of the American Cancer Society's Studies of Cancer Survivors. Cancer. 2007;109:112.
  • 25
    Degner LF, Sloan JA, Venkatesh P. The Control Preferences Scale. Can J Nurs Res. 1997;29:2143.
  • 26
    Ware JJ, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992;30:473483.
  • 27
    Ware JJ, Gandek B. Overview of the SF-36 health survey and the International Quality of Life Assessment (IQOLA) Project. J Clin Epidemiol. 1998;51:903912.
  • 28
    McNair DM, Lorr M, Droppelman LF. EDITS Manual: Profile of Mood States. San Diego, CA: Educational and Testing Service; 1971.
  • 29
    Sloan JA, Dueck A. Issues for statisticians in conducting analyses and translating results for quality of life end points in clinical trials. J Biopharm Stat. 2004;14:7396.
  • 30
    Molenaar S, Sprangers MA, Rutgers EJ, et al. Decision support for patients with early stage breast cancer: effects of an interactive breast cancer CD ROM on treatment decision, satisfaction, and quality of life. J Clin Oncol. 2001;19:16761687.
  • 31
    Husson O, Mols F, van de Poll-Franse VL. The relation between information provision and health-related quality of life, anxiety and depression among cancer survivors: a systematic review. Ann Oncol. 2011;22:761772.
  • 32
    Chewning B, Bylund CL, Shah B, Arora NK, Gueguen JA, Makoul G. Patient preferences for shared decisions: a systematic review. Patient Educ Couns. 2012;86:918.
  • 33
    Ankem K. Factors influencing information needs among cancer patients: a meta-analysis. Library Inf Science Res. 2006;28:723.
  • 34
    Davies NJ, Kinman G, Thomas RJ, Bailey T. Information satisfaction in breast and prostate cancer patients: implications for quality of life. Psychooncology. 2008;17:10481052.
  • 35
    Arora NK, Johnson P, Gustafson DH, McTavish F, Hawkins RP, Pingree S. Barriers to information access, perceived health competence, and psychosocial health outcomes: test of a mediation model in a breast cancer sample. Patient Educ Couns. 2002;47:3746.
  • 36
    Sloan JA, Symonds T, Vargas-Chanes D, Fridley B. Practical guidelines for assessing the clinical significance of health-related quality of life changes within clinical trials. Drug Inf J. 2003;37:2331.
  • 37
    Testa MA, Simonson DC. Assessment of quality-of-life outcomes. N Engl J Med. 1996;28:835840.
  • 38
    Gabriel SE, Normand ST. Getting the methods right—the foundation of patient-centered outcomes research. N Engl J Med. 2012;367:787790.