Informal caregiving for cancer patients

Authors

  • Francesca Romito PhD,

    Corresponding author
    1. Experimental Unit of Psycho-Oncology, Department of Critical Area and Surgery, National Cancer Research Center Istituto Tumori “Giovanni Paolo II,”, Bari, Italy
    • Corresponding author: Francesca Romito, MD, Experimental Unit of Psycho-Oncology, Department of Critical Area and Surgery, National Cancer Research Center Istituto Tumori “Giovanni Paolo II,” Via Orazio Flacco 65, 70126 Bari, Italy; Fax: (011) 39-080-5555328; francescaromito@yahoo.com

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  • Gil Goldzweig PhD,

    1. Department of Psychology, School of Behavioral Sciences, Tel-Aviv-Yaffo Academic College, Tel-Aviv, Israel
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  • Claudia Cormio PhD,

    1. Experimental Unit of Psycho-Oncology, Department of Critical Area and Surgery, National Cancer Research Center Istituto Tumori “Giovanni Paolo II,”, Bari, Italy
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  • Mariët Hagedoorn PhD,

    1. Health Psychology Section, Department of Health Sciences, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands
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  • Barbara L. Andersen PhD

    1. Department of Psychology, The Ohio State University, Columbus, Ohio
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  • European-American Dialogues on Cancer Survivorship: Current Perspectives and Emerging Issues

  • This supplement was guest edited by Vittorio Mattioli, MD (NCRC, Bari, Italy) and Kevin Stein, PhD (American Cancer Society, Atlanta, Georgia) and was produced with the authoritative contribution of 58 authors from the European Union and the United States. The primary aims are to highlight the potential differences between European and American approaches to cancer survivors' issues, increase coordination among oncologists and other primary care providers, and aid the development of a shared care model that can improve the quality of cancer care.

  • The opinions or views expressed in this supplement are those of the authors and do not necessarily reflect the opinions or recommendations of the journal editors, the American Cancer Society, John Wiley & Sons, Inc., or the National Cancer Research Centre Istituto Tumori “Giovanni Paolo II” Bari.

Abstract

According to the recent worldwide estimation by the GLOBOCAN project, in total, 12.7 million new cancer cases and 7.6 million cancer deaths occurred in 2008. The worldwide number of cancer survivors within 5 years of diagnosis has been estimated at be almost 28.8 million. Informal caregivers, such as family members and close friends, provide essential support to cancer patients. The authors of this report provide an overview of issues in the study of informal caregivers for cancer patients and long-term survivors in the United States and Europe, characterizing the caregivers commonly studied; the resources currently available to them; and their unmet needs, their psychosocial outcomes, and the psychosocial interventions tailored to their special circumstances. A broad overview of the state of research and knowledge, both in Europe and the United States, and observations on the directions for future research are provided. Cancer 2013;119(11 suppl):2160-9. © 2013 American Cancer Society.

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