• 1
    Engholm G, Ferlay J, Christensen N, et al. NORDCAN - a Nordic tool for cancer information, planning, quality control and research. Acta Oncol. 2010;49:725-736.
  • 2
    Siegel R, Naishadham D, Jemal A. Cancer Statistics, 2012. CA Cancer J Clin. 2012;62:10-29.
  • 3
    Verdecchia A, Francisci S, Brenner H, et al. Recent cancer survival in Europe: a 2000-02 period analysis of EUROCARE-4 data. Lancet Oncol. 2007;8:784-796.
  • 4
    Parry C, Kent EE, Mariotto AB, Alfano CM, Rowland JH. Cancer survivors: a booming population. Cancer Epidemiol Biomarkers Prev. 2011;20:1996-2005.
  • 5
    Ferlay J, Shin HR, Bray F, Forman D, Mathers C, Parkin DM. Estimates of worldwide burden of cancer in 2008: GLOBOCAN 2008. Int J Cancer. 2010;127:2893-2917.
  • 6
    Ries L, Smith MA, Gurney JG, et al. Cancer incidence and survival among children and adolescents: United States SEER Program 1975-1995. NIH Publication 99-4649. Bethesda, MD: National Cancer Institute, SEER Program; 1999.
  • 7
    Mullan F. Seasons of survival: reflections of a physician with cancer. N Engl J Med. 1985;313:270-273.
  • 8
    Deimling GT, Bowman KF, Wagner LJ. Cancer survivorship and identity among long-term survivors. Cancer Invest. 2007;25:758-765.
  • 9
    American Cancer Society. Cancer Treatment and Survivorship Facts & Figures 2012-2013. Atlanta, GA: American Cancer Society; 2012.
  • 10
    Frieden TR, Jaffe HW, Stephens JW, Thacker SB, Zaza S; Centers for Disease Control and Prevention. Cancer Survivors - United States, 2007. MMWR Morb Mortal Wkly Rep. 2011;60:269-272.
  • 11
    Smith T, Stein KD, Mehta CC, et al. The rationale, design, and implementation of the American Cancer Society's studies of cancer survivors. Cancer. 2007;109:1-12.
  • 12
    Hoey LM, Ieropoli SC, White VM, Jefford M. Systematic review of peer-support programs for people with cancer. Patient Educ Counseling. 2008;70:315-337.
  • 13
    National Research Council. Childhood Cancer Survivorship: Improving Care and Quality of Life. Washington, DC: National Academies Press; 2003.
  • 14
    Adler N, Page A. Cancer Care for the Whole Patient: Meeting Psychosocial Healthcare Needs. Washington, DC: Institute of Medicine (IOM); 2008.
  • 15
    Hewitt M, Greenfield S, Stovall E. From Cancer Patient to Cancer Survivor: Lost in Transition. Washington, DC: National Academies Press; 2006.
  • 16
    Centers for Disease Control and Prevention (CDC); the Lance Armstrong Foundation. A National Action Plan for Cancer Survivorship: Advancing Public Health Strategies. Atlanta, GA: CDC; 2004.
  • 17
    Rich IM, Andejeski Y, Alciati MH, et al. Perspective from the Department of Defense Breast Cancer Research Program. Breast Dis. 1998;10:33-45.
  • 18
    Fairley TL, Pollack LA, Moore AR, Smith JL. Addressing cancer survivorship through public health: an update from the Centers for Disease Control and Prevention. J Womens Health. 2009;18:1525-1531.
  • 19
    Reuben SH; President's Cancer Panel. 2003-2004 Annual Report Supplement. Living beyond cancer: A European dialogue. NIH Publication P996. Bethesda, MD: National Institutes of Health, National Cancer Institute; 2004.
  • 20
    Khan NF, Harrison S, Rose PW, Ward A, Evans J. Interpretation and acceptance of the term ‘cancer survivor': a United Kingdom-based qualitative study. Eur J Cancer Care. 2012;21:177-186.
  • 21
    De Angelis R, Francisci S, Baili P, et al. The EUROCARE-4 database on cancer survival in Europe: data standardisation, quality control and methods of statistical analysis. Eur J Cancer. 2009;45:909-930.
  • 22
    Capocaccia R, Colonna M, Corazziari I, et al. Measuring cancer prevalence in europe: the EUROPREVAL project. Ann Oncol. 2002;13:831-839.
  • 23
    Pisani P, Bray F, Parkin DM. Estimates of the world-wide prevalence of cancer for 25 sites in the adult population. Int J Cancer. 2002;97:72-81.
  • 24
    Commission of the European Communities. Communication from the Commission to the European Parliament, the Council, and the European Economic and Social Committee and the Committee of the Regions on Action Against Cancer: European Partnership. Publication COM(2009) 291/4. Brussels, Belgium: Commission of the European Communities; 2009.
  • 25
    Jefford M, Rowland J, Grunfeld E, Richards M, Maher J, Glaser A. Implementing improved post-treatment care for cancer survivors in England, with reflections from Australia, Canada and the USA. Br J Cancer. 2013;108:14-20.
  • 26
    Hawkins MM, Lancashire ER, Winter DL, et al. The British Childhood Cancer Survivor Study: Objectives, methods, population structure, response rates and initial descriptive information. Pediatr Blood Cancer. 2008;50:1018-1025.
  • 27
    Sprauten M, Darrah TH, Peterson DR, et al. Impact of long-term serum platinum concentrations on neuro- and ototoxicity in cisplatin-treated survivors of testicular cancer. J Clin Oncol. 2012;30:300-307.
  • 28
    Mattioli V, Montanaro R, Romito F. The Italian response to cancer survivorship research and practice: developing an evidence base for reform. J Cancer Surviv. 2010;4:284-289.
  • 29
    Parry C, Kent EE, Mariotto AB, Alfano CM, Rowland JH. Cancer survivors: a booming population. Cancer Epidemiol Biomarkers Prev. 2011;20:1996-2005.
  • 30
    Rowland JH, Glidewell OJ, Sibley RF, et al. Effects of different forms of central nervous system prophylaxis on neuropsychologic function in childhood leukemia. J Clin Oncol. 1984;2:1327-1335.
  • 31
    Dahl AA, Haaland CF, Mykletun A, et al. Study of anxiety disorder and depression in long-term survivors of testicular cancer. J Clin Oncol. 2005;23:2389-2395.
  • 32
    Oeffinger KC, Mertens AC, Sklar CA, et al. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med. 2006;355:1572-1582.
  • 33
    Pinto AC, de Azambuja E. Improving quality of life after breast cancer: dealing with symptoms. Maturitas. 2011;70:343-348.
  • 34
    Fossa SD, Cvancarova M, Chen L, et al. Adverse prognostic factors for testicular cancer-specific survival: a population-based study of 27,948 patients. J Clin Oncol. 2011;29:963-970.
  • 35
    Bhatia S. Role of genetic susceptibility in development of treatment-related adverse outcomes in cancer survivors. Cancer Epidemiol Biomarkers Prev. 2011;20:2048-2067.
  • 36
    Grunfeld E, Julian JA, Pond G, et al. Evaluating survivorship care plans: results of a randomized, clinical trial of patients with breast cancer. J Clin Oncol. 2011;29:4755-4762.
  • 37
    World Health Organization. World Health Statistics 2011. Geneva, Switzerland: WHO; 2011.
  • 38
    Niraula S, Seruga B, Ocana A, et al. The price we pay for progress: a meta-analysis of harms of newly approved anticancer drugs. J Clin Oncol. 2012;30:3012-3019.
  • 39
    D'Angio GJ. Cure is not enough. J Pediatr Hematol Oncol. 2005;27:508-509.
  • 40
    Eckhouse S, Castanas E, Chieco-Bianchi L, et al. European Cancer Research Funding Survey. London, UK: European Cancer Research Managers Forum; 2005.
  • 41
    National Cancer Survivorship Initiative. Priorities for Research on Cancer Survivorship: A Report From the National Cancer Survivorship Initiative Research Workstream. UK: Macmillan Cancer Support; 2010.
  • 42
    Rowland JH, Baker F. Introduction: resilience of cancer survivors across the lifespan. Cancer. 2005;104:2543-2548.
  • 43
    Alfano CM, Rowland JH. Recovery issues in cancer survivorship: a new challenge for supportive care. Cancer J. 2006;12:432-443.
  • 44
    van der Pal HJ, van Dalen EC, van Delden E, et al. High risk of symptomatic cardiac events in childhood cancer survivors. J Clin Oncol. 2012;30:1429-1437.
  • 45
    Oeffinger KC, McCabe MS. Models for delivering survivorship care. J Clin Oncol. 2006;24:5117-5124.
  • 46
    Magee CE, Hillan JA, Badger SA, Kennedy RJ, Kirk SJ. Risk stratification as a means of reducing the burden of follow-up after completion of initial treatment for breast cancer. Surgeon. 2011;9:61-64.
  • 47
    Erikson C, Salsberg E, Forte G, Bruinooge S, Goldstein M. Future supply and demand for oncologists: challenges to assuring access to oncology services. J Oncol Pract. 2007;3:79-86.
  • 48
    Pakilit AT, Kahn BA, Petersen L, Abraham LS, Greendale GA, Ganz PA. Making effective use of tumor registries for cancer survivorship research. Cancer. 2001;92:1305-1314.
  • 49
    Den Oudsten BL, Traa MJ, Thong MS, et al. Higher prevalence of sexual dysfunction in colon and rectal cancer survivors compared with the normative population: a population-based study. Eur J Cancer. 2012;48:3161-3170.
  • 50
    Mariotto AB, Rowland JH, Ries LA, Scoppa S, Feuer EJ. Multiple cancer prevalence: a growing challenge in long-term survivorship. Cancer Epidemiol Biomarkers Prev. 2007;16:566-571.
  • 51
    Ashley L, Jones H, Thomas J, et al. Integrating cancer survivors' experiences into UK cancer registries: design and development of the ePOCS system (electronic Patient-reported Outcomes from Cancer Survivors). Br J Cancer. 2011;105(suppl 1):S74-S81.
  • 52
    van de Poll-Franse LV, Horevoorts N, van Eenbergen M, et al; Profiles Registry Group. The Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship registry: scope, rationale and design of an infrastructure for the study of physical and psychosocial outcomes in cancer survivorship cohorts. Eur J Cancer. 2011;47:2188-2194.
  • 53
    Potosky AL, Warren JL, Riedel ER, Klabunde CN, Earle CC, Begg CB. Measuring complications of cancer treatment using the SEER-Medicare data. Med Care. 2002;40:IV-62 to IV-68.
  • 54
    Lerro CC, Stein KD, Smith T, Virgo KS. A systematic review of large-scale surveys of cancer survivors conducted in North America, 2000-2011. J Cancer Surviv. 2012;6:115-145.
  • 55
    Hewitt M, Breen N, Devesa S. Cancer prevalence and survivorship issues: analyses of the 1992 National Health Interview Survey. J Natl Cancer Inst. 1999;91:1480-1486.
  • 56
    Holmes MD, Chen WY, Feskanich D, Kroenke CH, Colditz GA. Physical activity and survival after breast cancer diagnosis. JAMA. 2005;293:2479-2486.
  • 57
    Buettner C, Kroenke CH, Phillips RS, Davis RB, Eisenberg DM, Holmes MD. Correlates of use of different types of complementary and alternative medicine by breast cancer survivors in the nurses' health study. Breast Cancer Res Treat. 2006;100:219-227.
  • 58
    Institute of Medicine (IOM). A National Cancer Clinical Trials System for the 21st Century: Reinvigorating the NCI Cooperative Group Program. Washington, DC: National Academies Press; 2010.
  • 59
    Ganz PA, Land SR, Antonio C, et al. Cancer survivorship research: the challenge of recruiting adult long term cancer survivors from a cooperative clinical trials group. J Cancer Surviv. 2009;3:137-147.
  • 60
    Robison LL, Armstrong GT, Boice JD, et al. The Childhood Cancer Survivor Study: a National Cancer Institute-supported resource for outcome and intervention research. J Clin Oncol. 2009;27:2308-2318.
  • 61
    Irwin ML, Crumley D, McTiernan A, et al. Physical activity levels before and after a diagnosis of breast carcinoma: the Health, Eating, Activity, and Lifestyle (HEAL) study. Cancer. 2003;97:1746-1757.
  • 62
    Fossa SD, Gilbert E, Dores GM, et al. Noncancer causes of death in survivors of testicular cancer. J Natl Cancer Inst. 2007;99:533-544.
  • 63
    Luckett T, King MT, Butow PN, et al. Choosing between the EORTC QLQ-C30 and FACT-G for measuring health-related quality of life in cancer clinical research: issues, evidence and recommendations. Ann Oncol. 2011;22:2179-2190.
  • 64
    Zebrack BJ, Ganz PA, Bernaards CA, Petersen L, Abraham L. Assessing the impact of cancer: development of a new instrument for long-term survivors. Psychooncology. 2006;15:407-421.
  • 65
    Khanna D, Krishnan E, Dewitt EM, Khanna PP, Spiegel B, Hays RD. The future of measuring patient reported outcomes in rheumatology: Patient-Reported Outcomes Measurement Information System (PROMIS). Arthritis Care Res (Hoboken). 2011;63(suppl 11):S486-S490.
  • 66
    Badalucco S, Reed KK. Supporting quality and patient safety in cancer clinical trials. Clin J Oncol Nurs. 2011;15:263-265.
  • 67
    Arora NK, Hamilton AS, Potosky AL, et al. Population-based survivorship research using cancer registries: a study of non-Hodgkin's lymphoma survivors. J Cancer Surviv. 2007;1:49-63.
  • 68
    Weaver KE, Forsythe LP, Reeve BB, et al. Mental and physical health-related quality of life among U.S. cancer survivors: population estimates from the 2010 National Health Interview Survey. Cancer Epidemiol Biomarkers Prev. 2012;21:2108-2117.
  • 69
    Smith AW, Reeve BB, Bellizzi KM, et al. Cancer, comorbidities, and health-related quality of life of older adults. Health Care Financ Rev. 2008;29:41-56.
  • 70
    Reeve BB, Potosky AL, Smith AW, et al. Impact of cancer on health-related quality of life of older Americans. J Natl Cancer Inst. 2009;101:860-868.
  • 71
    Feuerstein M. Innovations in health care for cancer survivors: let's learn from the past. J Cancer Surviv. 2007;1:177-178.
  • 72
    Ganz PA. Cancer Survivorship: Today and Tomorrow. New York: Springer; 2007.
  • 73
    Feuerstein M. Handbook of Cancer Survivorship. New York, NY: Springer; 2007.
  • 74
    Elena JW, Travis LB, Simonds NI, et al. Leveraging epidemiology and clinical studies of cancer outcomes: recommendations and opportunities for translational research. J Natl Cancer Inst. 2013;105:85-94.
  • 75
    World Health Organization (WHO). World Health Organization: International Classification of Functioning, Disability and Health (ICF). Geneva, Switzerland: WHO; 2001.