S.R. and R.H. contributed equally to this work.
Caregiving and coping in carers of people with anorexia nervosa admitted for intensive hospital care†
Article first published online: 25 OCT 2012
Copyright © 2012 Wiley Periodicals, Inc.
International Journal of Eating Disorders
Volume 46, Issue 4, pages 346–354, May 2013
How to Cite
Raenker, S., Hibbs, R., Goddard, E., Naumann, U., Arcelus, J., Ayton, A., Bamford, B., Boughton, N., Connan, F., Goss, K., Lazlo, B., Morgan, J., Moore, K., Robertson, D., Schreiber-Kounine, C., Sharma, S., Whitehead, L., Beecham, J., Schmidt, U. and Treasure, J. (2013), Caregiving and coping in carers of people with anorexia nervosa admitted for intensive hospital care. Int. J. Eat. Disord., 46: 346–354. doi: 10.1002/eat.22068
Supported by RP-PG-0606-1043 from National Institute for Health Research (NIHR) under its Programme Grants for Applied Research scheme, by NIHR Biomedical Research Centre for Mental Health, South London, and by Maudsley NHS Foundation Trust and Institute of Psychiatry, King's College London.
- Issue published online: 6 APR 2013
- Article first published online: 25 OCT 2012
- Manuscript Accepted: 3 SEP 2012
- National Institute for Health Research (NIHR). Grant Number: RP-PG-0606-1043
- NIHR Biomedical Research Centre for Mental Health, South London
- Maudsley NHS Foundation Trust and Institute of Psychiatry, King's College London
- anorexia nervosa;
- eating disorders;
- caregiving burden;
- social support;
The aim of the study was to examine how carers cope practically and emotionally with caring for individuals with anorexia nervosa who require intensive hospital care.
This study explores objective burden (time spent with caregiving and number of tasks), subjective burden (psychological distress), and social support in a sample of parents (n = 224) and partners (n = 28) from a consecutive series of patients (n = 178) admitted to inpatient units within the United Kingdom.
Most time was spent providing emotional support and less with practical tasks. Time spent with caregiving was associated with carer distress and was fully mediated by carer burden. This was ameliorated by social support. Partners received minimal support from others, and we found similar levels of burden and distress for mothers and partners.
The data indicate that professional and social support alleviates carer distress and may be of particular value for partners who are more isolated than parents. The data also suggest that time spent with practical support may be of more value than emotional support. © 2012 by Wiley Periodicals, Inc. (Int J Eat Disord 2013;)