• References to studies included in this review
  • Glueckauf 2002 {published data only}
  • Glueckauf RL, Fritz SP, Ecklund-Johnson EP, Liss HJ, Dages P, Carney P. Videoconferencing-based family counseling for rural teenagers with epilepsy: Phase 1 findings. Rehabilitation Psychology 2002;47(1):49-72.
  • Lewis 1990 {published data only}
  • Lewis MA, Salas I, de la Sota A, Chiofalo N, Leake B. Randomized trial of a program to enhance the competencies of children with epilepsy. Epilepsia 1990;31(1):101-9.
  • Lewis 1991 {published data only}
  • Lewis MA, Hatton CL, Salas I, Leake B, Chiofalo N. Impact of the Children's Epilepsy Program on parents. Epilepsia 1991;32(3):365-75.
  • Rau 2006 {published data only}
  • Rau J, May TW, Pfafflin M, Heubrock D, Petermann F. Education of children with epilepsy and their parents by the Modular Education Program Epilepsy for Families (FAMOSES) - results of an evaluation study [Schulung von Kinderen mit Epilepsie und deren Eltern mit dem Modularen Schulungsprogramm Epilepsie für Familien (FAMOSES) - Ergebnisse einer Evaluationsstudie]. Rehabilitation 2006;45:27-39.
  • Tieffenberg 2000 {published data only}
  • Tieffenberg JA, Wood EI, Alonso A, Tossutti MS, Vicente MF. A randomized field trial of ACINDES: a child-centered training model for children with chronic illnesses (Asthma and Epilepsy). Journal of Urban Health: Bulletin of the New York Academy of Medicine 2000;77(2):280-97.
  • References to studies excluded from this review
  • Mar 2005 {published data only}
  • Mar S, Dunkley C, Al-Ansari I, Whitehouse WP. Comparison of a dedicated children's seizure clinic to mixed general paediatric clinics. Child: Care, Health and Development 2005;31(5):597-602.
  • Price 2004 {published data only}
  • Price V, Murphy SO, Cureton VY. Increasing self-efficacy and knowledge through a seizure education programme for special education teachers. The Journal of School Nursing 2004;20(1):43-9.
  • Snead 2004 {published data only}
  • Snead K, Ackerson J, Bailey K, Schmitt MM, Madan-Swain A, Martin RC. Taking charge of epilepsy: the development of a structured psychoeducational group intervention for adolescents with epilepsy and their parents. Epilepsy and Behavior 2004;5(4):547-56.
  • References to studies awaiting assessment
  • Jantzen 2009 {published data only}
  • Jantzen S, Müller-Godeffroy E, Hallfahrt-Krisl T, Aksu F, Püst B, Kohl B, et al.FLIP&FLAP-a training programme for children and adolescents with epilepsy, and their parents. Seizure 2009; Vol. 18, issue 7:478-86.
  • Shore 2008 {published data only}
  • Shore CP, Perkins SM, Austin JK. The Seizures and Epilepsy Education (SEE) program for families of children with epilepsy: a preliminary study. Epilepsy & Behavior 2008; Vol. 12, issue 1:157-64.
  • Additional references
  • Betts 1992
  • Betts T. Epilepsy services. What people need, what they want, what they get. Acta Neurologica Scandinavica 1992;140(2):95-100.