Making sense of dementia: understanding amongst indigenous Australians

Authors

  • Gail Garvey,

    Corresponding author
    1. Cancer and Population Studies Group, Queensland Institute of Medical Research, Post Office Royal Brisbane Hospital, Queensland, Australia
    • Cancer and Population Studies Group, Queensland Institute of Medical Research, Post Office Royal Brisbane Hospital, Queensland, Australia.
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  • Donna Simmonds,

    1. Cancer and Population Studies Group, Queensland Institute of Medical Research, Post Office Royal Brisbane Hospital, Queensland, Australia
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  • Vanessa Clements,

    1. Cancer and Population Studies Group, Queensland Institute of Medical Research, Post Office Royal Brisbane Hospital, Queensland, Australia
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  • Peter O'Rourke,

    1. Cancer and Population Studies Group, Queensland Institute of Medical Research, Post Office Royal Brisbane Hospital, Queensland, Australia
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  • Karen Sullivan,

    1. School of Psychology and Counselling, Institute of Health and Biomedical Innovation, Queensland University of Technology, Kelvin Grove Campus, Brisbane, Queensland, Australia
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  • Don Gorman,

    1. Centre for Rural and Remote Area Health, University of Southern Queensland, Toowoomba, Queensland, Australia
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  • Venessa Curnow,

    1. Alzheimer's Australia, Westcourt, Queensland, Australia
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  • Susi Wise,

    1. Dementia Collaborative Research Centre, School of Nursing, Queensland University of Technology, Kelvin Grove, Brisbane, Queensland, Australia
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  • Elizabeth Beattie

    1. Dementia Collaborative Research Centre, School of Nursing, Queensland University of Technology, Kelvin Grove, Brisbane, Queensland, Australia
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  • © The Queensland University of Technology and The Queensland Institute of Medical Research, as represented by the Dementia Collaborative Research Centre: Carers and Consumers, 2009.

Abstract

Introduction

Dementia is a growing health and social concern for all Australians. Whilst the prevalence of dementia amongst Australia's indigenous people is unclear, there is some evidence that dementia rates are five times that of the general Australian population. To date no studies have examined dementia knowledge levels in indigenous communities.

Purpose of the study

This paper aims to explore indigenous Australians' understanding, knowledge and misconceptions of dementia.

Design and methods

Hundered and seventy-four indigenous adults participated in a cross-sectional survey using a modified version of the Alzheimer's Disease Knowledge Test (ADK). The survey included demographic information, two open-ended questions and 20 multiple choice questions. Each ADK item was examined to identify responses that revealed commonly held correct beliefs, knowledge gaps and misconceptions.

Results

The overall level of understanding of dementia was poor. Younger participants were significantly more likely to have no knowledge of Alzheimer's Disease, whereas the other age groups were most likely to have at least some knowledge. It was also revealed that there are common misconceptions about Alzheimer's Disease held by both indigenous and non-indigenous communities.

Implications

Culturally appropriate awareness campaigns and targeted educational interventions need to be implemented to improve the general level of understanding of dementia in indigenous communities. Copyright © 2010 John Wiley & Sons, Ltd.

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