Contract grant sponsor: EuroGentest2 (EU Contract FP7-261469).
Reflecting on Earlier Experiences with Unsolicited Findings: Points to Consider for Next-Generation Sequencing and Informed Consent in Diagnostics
Version of Record online: 16 JUL 2013
© 2013 The Authors. *Human Mutation published by Wiley Periodicals, Inc.
This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Volume 34, Issue 10, pages 1322–1328, October 2013
How to Cite
Rigter, T., Henneman, L., Kristoffersson, U., Hall, A., Yntema, H. G., Borry, P., Tönnies, H., Waisfisz, Q., Elting, M. W., Dondorp, W. J. and Cornel, M. C. (2013), Reflecting on Earlier Experiences with Unsolicited Findings: Points to Consider for Next-Generation Sequencing and Informed Consent in Diagnostics. Hum. Mutat., 34: 1322–1328. doi: 10.1002/humu.22370
Communicated by Segolène Ayme
- Issue online: 18 SEP 2013
- Version of Record online: 16 JUL 2013
- Accepted manuscript online: 19 JUN 2013 06:19AM EST
- Manuscript Accepted: 13 JUN 2013
- Manuscript Received: 7 JAN 2013
- EuroGentest2. Grant Number: FP7-261469
Disclaimer: Supplementary materials have been peer-reviewed but not copyedited.
Figure S1. Blood spot card from the Netherlands (2009, simplified and translated). Downloaded at: http://www.rivm.nl/ October 8, 2012.
Figure S2. Informed consent form Tumor Genetic Research, Helsinki (2012, translated) Courtesy: Prof. Lauri Aaltonen.
Figure S3. Consent statement disclosure of outcome of prenatal Array-CGH, VUMC Amsterdam, the Netherlands* (2011, translated). Courtesy: Kyra Stuurman.
Figure S4. Consent form exome sequencing, RUNMC Nijmegen, the Netherlands (2011). Courtesy: Helger Yntema.
Table S1. Workshop Amsterdam, March 21, 2012: Informed Consent for Exome Sequencing in Diagnostics
Table S2. Proposed categories of unsolicited findings: which unsolicited results should be communicated?
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