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Keywords:

  • behaviors;
  • caregiver;
  • stroke

This descriptive study was part of a larger research effort that investigated the effects of stroke on the behaviors of stroke survivors and their family caregivers. The objective was to examine the perceptions of stroke survivor behaviors from the perspectives of the stroke survivor and of the caregiver so that behaviors for which proxy data might safely be used could be identified. Behaviors were assessed with the Brain Impairment Behavior Scale (BIBS), which was developed to estimate the behaviors of stroke survivors. Domains indexed by the BIBS are indifference, irritability, inertia, cognitive difficulty, interpersonal exchange, emotional dependency, and physical dependency. Two samples of stroke survivors and their family caregivers contributed data to the study. Caregivers generally perceived stroke survivors as more impaired on each subscale than did the survivors. Paired t tests showed significant differences for the subscales estimating inertia, cognition, and interpersonal exchange. Findings from this study suggest that proxy information may be safely substituted for estimates of irritability and emotional dependence, but perhaps not for other domains of interest. Although several other comparisons did not achieve statistical significance using the Bonferroni correction for multiple comparisons (p = .007), the differences may be important substantively.