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Patient and Caregiver Perceptions of Stroke Survivor Behavior: A Comparison

Authors

  • Anne M. Williams PhD RN,

    Corresponding author
      University of Alabama School of Nursing, University of Alabama at Birmingham, 1530 3rd Avenue S., Birmingham, AL 35294-1210 or e-mail williama@son.uab.edu
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    • Anne M. Williams is an assistant professor at the University of Alabama at Birmingham, School of Nursing.

  • Carol Webb Dahl MSN CRNP

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    • Carol Webb Dahl is an acute care nurse practitioner at the University of Alabama Hospital.


University of Alabama School of Nursing, University of Alabama at Birmingham, 1530 3rd Avenue S., Birmingham, AL 35294-1210 or e-mail williama@son.uab.edu

Abstract

This descriptive study was part of a larger research effort that investigated the effects of stroke on the behaviors of stroke survivors and their family caregivers. The objective was to examine the perceptions of stroke survivor behaviors from the perspectives of the stroke survivor and of the caregiver so that behaviors for which proxy data might safely be used could be identified. Behaviors were assessed with the Brain Impairment Behavior Scale (BIBS), which was developed to estimate the behaviors of stroke survivors. Domains indexed by the BIBS are indifference, irritability, inertia, cognitive difficulty, interpersonal exchange, emotional dependency, and physical dependency. Two samples of stroke survivors and their family caregivers contributed data to the study. Caregivers generally perceived stroke survivors as more impaired on each subscale than did the survivors. Paired t tests showed significant differences for the subscales estimating inertia, cognition, and interpersonal exchange. Findings from this study suggest that proxy information may be safely substituted for estimates of irritability and emotional dependence, but perhaps not for other domains of interest. Although several other comparisons did not achieve statistical significance using the Bonferroni correction for multiple comparisons (p = .007), the differences may be important substantively.

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