Funding agencies: This study was supported by Jacques and Gloria Gossweiler Foundation, a nonprofit organization under the Swiss law.
The Huntington's disease dysphagia scale
Article first published online: 23 MAY 2014
© 2014 International Parkinson and Movement Disorder Society
Volume 29, Issue 10, pages 1312–1316, September 2014
How to Cite
Heemskerk, A.-W., Verbist, B. M., Marinus, J., Heijnen, B., Sjögren, E. V. and Roos, R. A.C. (2014), The Huntington's disease dysphagia scale. Mov. Disord., 29: 1312–1316. doi: 10.1002/mds.25922
Relevant conflicts of interest/financial disclosures: Nothing to report.
Full financial disclosures and author roles may be found in the online version of this article.
- Issue published online: 10 SEP 2014
- Article first published online: 23 MAY 2014
- Manuscript Accepted: 27 APR 2014
- Manuscript Revised: 15 APR 2014
- Manuscript Received: 30 DEC 2013
- Huntington's disease;
Little is known about the swallowing disturbances of patients with Huntington's disease; therefore, we developed the Huntington's Disease Dysphagia Scale.
The scale was developed in four stages: (1) item generation, (2) comprehension testing, (3) evaluation of reliability, (4) item reduction and validity testing. The questionnaire was presented twice to 50 Huntington's disease patients and their caregivers. The Kruskal-Wallis test was used to evaluate whether the severity of swallowing difficulties increased with advancing disease. Pearson's correlation coefficient was used to examine the construct validity with the Swallowing Disturbance Questionnaire.
The final version contained 11 items with five response options and exhibited a Cronbach's alpha coefficient of 0.728. The severity of swallowing difficulties was significantly higher in more advanced Huntington's disease. The correlation with the Swallowing Disturbance Questionnaire was 0.734.
We developed a valid and reliable 11-item scale to measure the severity of dysphagia in Huntington's disease. © 2014 International Parkinson and Movement Disorder Society