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Abstract

Reports on a qualitative study of an asynchronous discussion forum hosted by PatientsLikeMe (PLM), an online community supporting 2,300 patients with chronic diseases like ALS (Lou Gehrig's Disease). Examines selected posts marked as “of particular interest” by the researchersas the basis of an analysis of the PLM group's social norms and information values, as reflected by the content of participants' posts.