Supported by the French Muscular Dystrophy Association.
Activity rating scales in adult muscle disease: How well do they actually measure?
Version of Record online: 11 JAN 2014
Copyright © 2013 Wiley Periodicals, Inc.
Muscle & Nerve
Volume 50, Issue 1, pages 24–33, July 2014
How to Cite
Seedat, F., James, M. K. and Rose, M. R. (2014), Activity rating scales in adult muscle disease: How well do they actually measure?. Muscle Nerve, 50: 24–33. doi: 10.1002/mus.24090
- Issue online: 19 JUN 2014
- Version of Record online: 11 JAN 2014
- Accepted manuscript online: 10 OCT 2013 01:15PM EST
- Manuscript Accepted: 4 OCT 2013
- Manuscript Revised: 2 OCT 2013
- Manuscript Received: 3 MAY 2013
- functional rating scales;
- muscle disease;
- outcome measures;
- psychometric properties;
- systematic review
Introduction: In an accompanying study we reported on the content of several activity rating scales that have been used for muscle disease. To further aid in achieving consensus we conducted a systematic review to assess the quality of the 19 activity rating scales designed specifically for muscle disease. Methods: We analyzed the measurement properties and the feasibility of the 19 instruments. Several databases were searched for studies relating to the quality of the instruments under review. Two independent reviewers selected studies and assessed instrument quality using pre-agreed criteria based on published frameworks. Results: We found that none of the 19 instruments have sufficiently comprehensive reporting of measurement or feasibility performance as would be required by regulatory authorities. Conclusions: Further work is required urgently to address these deficiencies of reporting or acquiring additional data. Until then, there will remain a major barrier for translational research to overcome. Muscle Nerve 50: 24–33, 2014