Measuring health-related quality of life in women with urogenital dysfunction: The urogenital distress inventory and incontinence impact questionnaire revisited

Authors

  • C. Huub van der Vaart,

    Corresponding author
    1. Department of Obstetrics, Neonatology and Gynecology, University Medical Center, Utrecht, The Netherlands
    • University Medical Center, Utrecht, Department of Obstetrics, Neonatology and Gynecology, Heidelberglaan 100, P.O. Box 85500, 3508 GA Utrecht, The Netherlands.
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  • J. Rob J. de Leeuw,

    1. Research Group Psychology of Health and Illness, University Utrecht, Utrecht, The Netherlands
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  • Jan-Paul W.R. Roovers,

    1. Department of Obstetrics, Neonatology and Gynecology, University Medical Center, Utrecht, The Netherlands
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  • A. Peter M. Heintz

    1. Department of Obstetrics, Neonatology and Gynecology, University Medical Center, Utrecht, The Netherlands
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Abstract

Aims

Symptoms of urogenital dysfunction are known to negatively affect health-related quality of life in women. To assess effectiveness of treatment, it is currently recommended to include measurements of quality of life in outcome analysis. One of the questionnaires that is commonly used is the combination of the Urogenital Distress Inventory (UDI) and Incontinence Impact Questionnaire (IIQ). Unfortunately, the validity of the UDI and IIQ has only been tested in highly selected subgroups of female patients. Therefore, it is unclear whether this questionnaire is suitable for use in populations with different characteristics.

Methods

We analyzed the scale construction and validity of the UDI and IIQ in a random sample of 2,042 women, aged 20–70 years old and a clinical sample of 196 women.

Results

Our results show that the UDI can be divided into five subscales, namely discomfort/pain, urinary incontinence, overactive bladder, genital prolapse, and obstructive micturition. The internal consistency (Cronbach's alpha) ranged between 0.74 and 0.82. In addition to the original four subscales of the IIQ (mobility, physical, social, and emotional functioning), we identified a fifth subscale with four items about embarrassment. Internal consistency of these subscales ranged between 0.83 and 0.93. In addition to the internal consistency, we tested the criterion and construct validity of these new subscale division.

Conclusions

We found these subscales to be reliable and of clinical use. It is recommended to use the revised UDI and IIQ in outcome analysis of treatments for urogenital symptoms in women. Neurourol. Urodynam. 22:97–104, 2003. © 2003 Wiley-Liss, Inc.

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