Mary Lou Willard French Professor of Nursing.
Focus on Research Method
Research with families facing cancer: The challenges of accrual and retention†
Article first published online: 4 MAY 2006
Copyright © 2006 Wiley Periodicals, Inc.
Research in Nursing & Health
Volume 29, Issue 3, pages 199–211, June 2006
How to Cite
Northouse, L. L., Rosset, T., Phillips, L., Mood, D., Schafenacker, A. and Kershaw, T. (2006), Research with families facing cancer: The challenges of accrual and retention. Res. Nurs. Health, 29: 199–211. doi: 10.1002/nur.20128
We acknowledge the contributions of our outstanding data collectors: Charlotte Cowles, Marilyn Jeffs, Heather Kapp, Nancy Lunsford, Elizabeth Palen, Laurel Phillips, Tansey Rosset, Evelyn Sims, and Cordelia Tucker, as well as the excellent referral staff: Karen Baranowski, Monika Benedict, Judith Fardig, Kathleen Fasing, Elizabeth Galvin, Martha Heath, Patricia Kielczewski, Pamela Laszewski, Nancy Lefkowitz, Karin Olson, Donna Osborne, and Doris Sepe.
- Issue published online: 4 MAY 2006
- Article first published online: 4 MAY 2006
- Manuscript Accepted: 3 FEB 2006
- National Cancer Institute. Grant Number: R01 CA 090739
- quality of life;
- retention, randomized clinical trial
The purposes of this article are: (a) to describe and analyze the accrual and retention patterns in a longitudinal randomized clinical trial with prostate cancer patients and their partners, and (b) to discuss strategies that were used to overcome challenges in conducting this family-based study. Initially, 429 dyads were referred to the study. Of these, 166 were not enrolled due to refusal (n = 120) or ineligibility (n = 46), 21 of whom did not meet one or more of the inclusion criteria, and 25 of whom could not be reached within the 2-month window of eligibility. Of the 383 eligible dyads, 263 dyads were enrolled (enrollment rate of 68.7%). Accrual and retention patterns differed by research site, referral procedures, and phase of prostate cancer. The retention rate was very good with the majority of dyads (n = 218) completing all three follow-up assessments at 4, 8, and 12 months (82.9%). © 2006 Wiley Periodicals, Inc. Res Nurs Health 29:199–211, 2006