Associate Dean for Research, Frances Hill Fox Distinguished Professor.
Parental perceptions of the outcome and meaning of normalization†
Article first published online: 27 JAN 2010
Copyright © 2010 Wiley Periodicals, Inc.
Research in Nursing & Health
Volume 33, Issue 2, pages 87–98, April 2010
How to Cite
Knafl, K. A., Darney, B. G., Gallo, A. M. and Angst, D. B. (2010), Parental perceptions of the outcome and meaning of normalization. Res. Nurs. Health, 33: 87–98. doi: 10.1002/nur.20367
The authors wish to thank Virginia Lewis and Valerie Parham-Thompson for their assistance with this article. We acknowledge the financial support of the National Institute for Human Genome Research (R01HG/HD02036, P.I. Gallo).
- Issue published online: 12 MAR 2010
- Article first published online: 27 JAN 2010
- Manuscript Accepted: 23 NOV 2009
- genetic condition;
The purpose of this secondary analysis was to identify the meaning of normalization for parents of a child with a chronic genetic condition. The sample was comprised of 28 families (48 parents), selected to reflect two groups: Normalization Present (NP) and Normalization Absent (NA). Constant comparison analysis was used to identify themes characterizing parents' perceptions of the meaning of normalization. The meanings parents attributed to normalization reflected their evaluation of condition management, parenting role, and condition impact, with parents in the NP and NA groups demonstrating distinct patterns of meaning. These meaning patterns are discussed as an outcome of normalization. Providers can play a pivotal role in helping families achieve normalization by providing guidance on how to balance condition management with normal family life. © 2010 Wiley Periodicals, Inc. Res Nurs Health 33:87–98, 2010