Factors Associated With Parental Perception of Child Vulnerability 12 Months After Abnormal Newborn Screening Results

Authors

  • Audrey Tluczek,

    1. School of Nursing, University of Wisconsin-Madison, 600 Highland Ave., Madison, WI 53792
    2. Department of Pediatrics, School of Medicine and Public Health, University of Wisconsin-Madison, Madison, WI
    Search for more papers by this author
  • Anne Chevalier McKechnie,

    1. School of Nursing, University of Wisconsin-Madison, 600 Highland Ave., Madison, WI 53792
    Search for more papers by this author
  • Roger L. Brown

    1. School of Nursing, University of Wisconsin-Madison, 600 Highland Ave., Madison, WI 53792
    2. Department of Family Medicine, School of Medicine and Public Health, University of Wisconsin-Madison, Madison, WI
    Search for more papers by this author

  • We wish to thank the participants in this study and the research teams from the University of Wisconsin-Madison, the American Family Children's Hospital, the Children's Hospital of Wisconsin, the Marshfield Clinic, the Gunderson-Lutheran Medical Center, and the Wisconsin State Laboratory of Hygiene. Special thanks to Philip M. Farrell, MD, PhD, Karen Pridham, PhD, RN, FAAN, Patricia Becker, PhD, RN, FAAN, and Laura Hogan, PhD for their wisdom in the preparation of this manuscript.

Abstract

We identified factors associated with elevated parental perceptions of child vulnerability (PPCV) 12 months after newborn screening (NBS) of 136 children: healthy, normal results (H, n = 37), cystic fibrosis carriers (CF-C, n = 40), congenital hypothyroidism (CH, n = 36), and cystic fibrosis (CF, n = 23). Controlling for infant and parent characteristics, mixed logit structural equation modeling showed direct paths to elevated PPCV included parent female sex, CF diagnosis, and high documented illness frequency. PPCV was positively associated with maternal parenting stress. Infants with CF and CF carriers had significantly more documented illness frequency than H group infants. The CH group did not differ significantly from the H group and had no paths to PPCV. Unexpectedly high documented illness frequency among infants who are CF carriers warrants further investigation. © 2011 Wiley Periodicals, Inc. Res Nurs Health 34:389–400, 2011

Ancillary