JAHF and Atlantic Philanthropies Claire M. Fagin Fellow.
Living with advanced heart failure or COPD: Experiences and goals of individuals nearing the end of life
Article first published online: 10 JUN 2013
Copyright © 2013 Wiley Periodicals, Inc.
Research in Nursing & Health
Volume 36, Issue 4, pages 349–358, August 2013
How to Cite
Lowey, S. E., Norton, S. A., Quinn, J. R. and Quill, T. E. (2013), Living with advanced heart failure or COPD: Experiences and goals of individuals nearing the end of life. Res. Nurs. Health, 36: 349–358. doi: 10.1002/nur.21546
This work was supported by an NIH/NINR Ruth L. Kirschstein National Research Service Award (1F-31NR011125) and Sigma Theta Tau International Honor Society Small Grant (09-00832).
- Issue published online: 19 JUL 2013
- Article first published online: 10 JUN 2013
- Manuscript Accepted: 1 APR 2013
- NIH/NINR Ruth L. Kirschstein National Research Service Award. Grant Number: 1F-31NR011125
- Sigma Theta Tau International Honor Society Small Grant. Grant Number: 09-00832
- heart failure;
- death and dying;
- chronic illness;
The last phase of life of patients with end-stage heart failure (HF) or chronic obstructive pulmonary disease (COPD) is marked by high symptom burden and uncertainty about the future. Few enroll in hospice, and their preferences for care remain unknown. The purpose of this qualitative study was to describe the experiences and goals for care of patients with end-stage HF and COPD who were recently discharged from the hospital. Forty semi-structured interviews were completed with 20 participants. Despite conditions considered life-threatening by clinicians, participants believed they still had time. They hoped that their illnesses would remain stable, although specific experiences made them think they might be worsening. All expected that their doctors would tell them when their illnesses became life-threatening. © 2013 Wiley Periodicals, Inc. Res Nurs Health 36: 349–358, 2013