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Research Article
A questionnaire based review of long-term follow-up programs for survivors of childhood cancer in Canada
Article first published online: 26 SEP 2008
DOI: 10.1002/pbc.21701
Copyright © 2008 Wiley-Liss, Inc.
Additional Information
How to Cite
Guilcher, G., Fitzgerald, C. and Pritchard, S. (2009), A questionnaire based review of long-term follow-up programs for survivors of childhood cancer in Canada. Pediatric Blood & Cancer, 52: 113–115. doi: 10.1002/pbc.21701
Publication History
- Issue published online: 12 NOV 2008
- Article first published online: 26 SEP 2008
- Manuscript Accepted: 13 JUN 2008
- Manuscript Received: 17 JAN 2008
Keywords:
- childhood cancer;
- follow-up programs;
- late effects;
- survivors
Abstract
Background
Major advances have been made in the treatment of childhood cancer; however, survivors of childhood cancer are at increased risk for morbidity and mortality. There is little literature regarding available long-term follow-up programs for survivors of childhood cancer.
Procedure
In March 2007, 16 surveys were sent to pediatric hematology/oncology programs across Canada to determine what programs were available for survivors of childhood cancer, and the nature of such programs.
Results
Of 15 participating centers, 13 (87%) have multi-disciplinary programs for the long-term follow-up of pediatric cancer survivors. Research databases were documented in 9/15 (60%) of centers to document late effects. Dedicated programs for adult survivors of childhood cancer were established in 8/15 (53%) of centers. Access to subspecialty care for survivors was rated as quite good. Concerns were raised by many participants about patients being lost to follow-up. Respondents indicated that primary care physicians appear to be under-represented within dedicated long-term follow-up programs.
Conclusion
Long-term follow-up programs for survivors of childhood cancer are available in 87% of Canadian pediatric oncology centers. While programs reported good access to care for childhood survivors, many adult survivors of childhood cancer have more limited timely access to services and patients are often lost to follow-up. New models of care incorporating primary care physicians are necessary due to growing numbers of survivors. Pediatr Blood Cancer 2009;52:113–115. © 2008 Wiley-Liss, Inc.