• 1
    Curry HL, Parkes SE, Powell JE, et al. Caring for survivors of childhood cancers: The size of the problem. Eur J Cancer 2006; 42: 501508.
  • 2
    Gatta G, Zigon G, Capocaccia R, et al. Survival of European children and young adults with cancer diagnosed 1995–2002. Eur J Cancer 2009; 45: 9921005.
  • 3
    Howlader N, Noone AM, Krapcho M, et al., editors. SEER cancer statistics review, 1975–2008. Bethesda, MD: National Cancer Institute., based on November 2010 SEER data submission, posted to the SEER web site, 2011.
  • 4
    Hewitt M, Weiner SL, Simone JV, editors Childhood Cancer Survivorship: Improving Care and Quality of Life. Washington, DC: The International Academies Press; 2003.
  • 5
    Oeffinger KC, Mertens AC, Sklar CA, et al. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 2006; 355: 15721582.
  • 6
    Geenen MM, Cardous-Ubbink MC, Kremer LC, et al. Medical assessment of adverse health outcomes in long-term survivors of childhood cancer. JAMA 2007; 297: 27052715.
  • 7
    Wallace HB, Green DM, editors. Late effects of childhood cancer. London: Arnold Publication; 2004.
  • 8
    Yeh JM, Nekhlyudov L, Goldie SJ, et al. A model-based estimate of cumulative excess mortality in survivors of childhood cancer. Ann Intern Med 2010; 152: 409117.
  • 9
    Wallace WH, Blacklay A, Eiser C, et al. Developing strategies for long term follow up of survivors of childhood cancer. BMJ 2001; 323: 271274.
  • 10
    Oeffinger KC, Hudson MM, Landier W. Survivorship: Childhood cancer survivors. Prim Care 2009; 36: 743780.
  • 11
    IOM (Institute of Medicine). Clinical practice guidelines we can trust. Washington, DC: The National Academies Press; 2011.
  • 12
    Gibbons RJ, Smith SC, Jr., Antman E. American College of Cardiology/American Heart Association clinical practice guidelines: Part II: Evolutionary changes in a continuous quality improvement project. Circulation 2003; 107: 31013107.
  • 13
    Califf RM, Peterson ED, Gibbons RJ, et al. Integrating quality into the cycle of therapeutic development. J Am Coll Cardiol 2002; 40: 18951901.
  • 14
    Bero LA, Grilli R, Grimshaw JM, et al. Closing the gap between research and practice: An overview of systematic reviews of interventions to promote the implementation of research findings. The Cochrane Effective Practice and Organization of Care Review Group. BMJ 1998; 317: 465468.
  • 15
    Grimshaw JM, Russell IT. Effect of clinical guidelines on medical practice: A systematic review of rigorous evaluations. Lancet 1993; 342: 13171322.
  • 16
    Woolf SH, Grol R, Hutchinson A, et al. Clinical guidelines: Potential benefits, limitations, and harms of clinical guidelines. BMJ 1999; 318: 527530.
  • 17
    Shaneyfelt TM, Mayo-Smith MF, Rothwangl J. Are guidelines following guidelines? The methodological quality of clinical practice guidelines in the peer-reviewed medical literature. JAMA 1999; 281: 19001905.
  • 18
    Thomson R, McElroy H, Sudlow M. Guidelines on anticoagulant treatment in atrial fibrillation in Great Britain: Variation in content and implications for treatment. BMJ 1998; 316: 509513.
  • 19
    Richmond TK, Freed GL, Clark SJ, et al. Guidelines for adolescent well care: Is there consensus? Curr Opin Pediatr 2006; 18: 365370.
  • 20
    Grilli R, Magrini N, Penna A, et al. Practice guidelines developed by specialty societies: The need for a critical appraisal. Lancet 2000; 355: 103106.
  • 21
    Landier W, Bhatia S, Eshelman DA, et al. Development of risk-based guidelines for pediatric cancer survivors: The Children's Oncology Group Long-Term Follow-Up Guidelines from the Children's Oncology Group Late Effects Committee and Nursing Discipline. J Clin Oncol 2004; 22: 49794990.
  • 22
    Children's Oncology Group. Long-term follow-up guidelines for survivors of childhood, adolescent, and young adult cancers. Version 3.0; 2008. Available online:
  • 23
    Dutch Childhood Oncology Group. Richtlijn follow-up na kinderkanker meer dan 5 jaar na diagnose. SKION, Den Haag/Amsterdam; 2010. Available online:
  • 24
    Scottish Intercollegiate Guidelines Network. Long term follow up of survivors of childhood cancer. A national clinical guideline. 2004. Available online:
  • 25
    United Kingdom Children's Cancer Study Group Late Effects Group. Therapy based long term follow up practice statement. 2011. Available online:
  • 26
    The AGREE Collaboration. Development and validation of an international appraisal instrument for assessing the quality of clinical practice guidelines: The AGREE project. Qual Saf Health Care 2003; 12: 1823.
  • 27
    European Symposium on Late Complications after Childhood Cancer.
  • 28
    International Conference on Long-Term Complications of Treatment of Children and Adolescents for Cancer.
  • 29
    Gibbons RJ, Smith S, Antman E. American College of Cardiology/American Heart Association clinical practice guidelines: Part I: Where do they come from? Circulation 2003; 107: 29792986.
  • 30
    GRADE Working Group. Grading quality of evidence and strength of recommendations. BMJ 2004; 328: 14901494.
  • 31
    Jones J, Hunter D. Consensus methods for medical and health services research. BMJ 1995; 311: 376380.
  • 32
    Grol R, Grimshaw J. From best evidence to best practice: Effective implementation of change in patients' care. Lancet 2003; 362: 12251230.