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Prenatal screening for Down syndrome: a survey of willingness in women and family physicians to engage in shared decision-making

Authors

  • France Légaré,

    Corresponding author
    1. Department of Family Medicine and Emergency Medicine, Faculty of Medicine, Université Laval, Québec City, Canada
    2. CHUQ Research Center—St-François d'Assise Hospital, Québec City, Canada
    3. The CanGèneTest research consortium on genetic laboratory services, Québec City, Canada
    • CHUQ Research Center-Hôpital St-François d'Assise, 10 rue Espinay, Québec City, QC, Canada, G1L 3L5.
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  • Sylvie St-Jacques,

    1. CHUQ Research Center—St-François d'Assise Hospital, Québec City, Canada
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  • Susie Gagnon,

    1. CHUQ Research Center—St-François d'Assise Hospital, Québec City, Canada
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  • Merlin Njoya,

    1. CHUQ Research Center—St-François d'Assise Hospital, Québec City, Canada
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  • Michel Brisson,

    1. Department of Family Medicine and Emergency Medicine, Faculty of Medicine, Université Laval, Québec City, Canada
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  • Pierre Frémont,

    1. Department of Rehabilitation, Faculty of Medicine, Université Laval, Québec City, Canada
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  • François Rousseau

    1. CHUQ Research Center—St-François d'Assise Hospital, Québec City, Canada
    2. The CanGèneTest research consortium on genetic laboratory services, Québec City, Canada
    3. Department of Medical Biology, Faculty of Medicine, Université Laval, Québec City, Canada
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Abstract

Objective

To assess the willingness of women and their family physicians (FPs) to engage in shared decision-making (SDM) as regards prenatal Down-syndrome screening and the factors that might influence their willingness to do so.

Methods

We conducted a survey of participants in Québec City, Canada, using the theory of planned behavior. We used a general linear model and multilevel approach that took the fact that some women consulted the same FP into account.

Results

This study comprised 109 pregnant women and 41 FPs. On a scale of − 3 to + 3, the pregnant women's and FPs' response scores were, respectively, 2.11 ± 1.38 and 2.66 ± 0.40. In women, attitude, significant others, self-efficacy, perceived moral correctness, and their FP's attitude influenced their willingness to engage in SDM. However, women without a post-secondary education were less likely to engage in SDM than women with a post-secondary education, mostly because the former lacked a sense of self-efficacy. In FPs, only attitude and significant others influenced their willingness to engage in SDM.

Conclusion

Overall, the women and their FPs wished to engage in SDM as regards prenatal Down-syndrome screening. Only a few factors influenced this desire which therefore may be modifiable. Copyright © 2011 John Wiley & Sons, Ltd.

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