Assessing unmet supportive care needs in partners of cancer survivors: the development and evaluation of the Cancer Survivors' Partners Unmet Needs measure (CaSPUN)
Article first published online: 18 DEC 2006
Copyright © 2006 John Wiley & Sons, Ltd.
Volume 16, Issue 9, pages 805–813, September 2007
How to Cite
Hodgkinson, K., Butow, P., Hobbs, K. M., Hunt, G. E., Lo, S. K. and Wain, G. (2007), Assessing unmet supportive care needs in partners of cancer survivors: the development and evaluation of the Cancer Survivors' Partners Unmet Needs measure (CaSPUN). Psycho-Oncology, 16: 805–813. doi: 10.1002/pon.1138
- Issue published online: 21 AUG 2007
- Article first published online: 18 DEC 2006
- Manuscript Accepted: 13 OCT 2006
- Manuscript Revised: 21 AUG 2006
- Manuscript Received: 6 DEC 2005
- NSW Institute of Psychiatry, Australia
- cancer survivors;
- supportive care
Background: Partners of cancer patients typically provide the majority of patients' emotional and physical care. Partners may be profoundly affected by the cancer and may experience ongoing supportive care needs across the survivorship continuum. Research has been restricted by a lack of psychometrically evaluated measures and in this study, a self-report measure of partners' needs was developed and empirically evaluated.
Methods: Questionnaire items generated from a qualitative study were constructed into a 47- item unmet need measure (Cancer Survivors' Partners Unmet Needs measure, CaSPUN). The psychometric properties of the CaSPUN were evaluated in 212 partners of patients who had been diagnosed with cancer 1–11 years earlier and were currently disease-free.
Results: The CaSPUN was modified to include 35 unmet need items, 6 positive change items and an open ended item. The CaSPUN demonstrates a high level of acceptability, internal consistency and construct validity, although test–retest reliability was moderate. Factor analysis identified five discrete factors: (1) Relationships, (2) Information, (3) Partner Issues, (4) Comprehensive Care and (5) Emotional Support.
Conclusions: The CaSPUN permits the identification of long-term supportive care needs in generic populations of cancer survivors' partners and will assist with the formulation of recommendations regarding required supportive care services. Copyright © 2006 John Wiley & Sons, Ltd.