• 1
    Bultz BD, Speca M, Brasher PM, Geggie PH, Page SA. A randomized controlled trial of a brief psychoeducational support group for partners of early stage breast cancer patients. Psycho-Oncology 2000;9(4):303313.
  • 2
    Carlson LE, Ottenbreit N, St PM, Bultz BD. Partner understanding of the breast and prostate cancer experience. Cancer Nurs 2001;24(3):231239.
  • 3
    Zabora JR, Smith ED, Baker F, Wingard JR, Curbow B. The family: the other side of bone marrow transplantation. J Psychosoc Oncol 1992;10(1):3546.
  • 4
    Kissane D, Bloch S. Family Focused Grief Therapy. Oxford University Press: Oxford, 2002.
  • 5
    Hudson P, Payne S. Family Carers in Palliative Care. Oxford University Press: Oxford, 2008.
  • 6
    Haley WE. Family caregivers of elderly patients with cancer: understanding and minimizing the burden of care. J Support Oncol 2003;1(4):19.
  • 7
    Nijboer C, Tempelaar R, Sanderman R, Triemstra M, Spruijt RJ, van den Bos GA. Cancer and caregiving: the impact on the caregiver's health. Psycho-Oncology 1998;7(1):313.
  • 8
    Morse SR, Fife B. Coping with a partner's cancer: adjustment at four stages of the illness trajectory. Oncol Nurs Forum 1998;25(4):751760.
  • 9
    Nijboer C, Tempelaar R, Triemstra M, van den Bos GA, Sanderman R. The role of social and psychologic resources in caregiving of cancer patients. Cancer 2001;91(5):10291039.
  • 10
    Northouse LL, Mood D, Templin T, Mellon S, George T. Couples' patterns of adjustment to colon cancer. Soc Sci Med 2000;50(2):271284.
  • 11
    Ruland CM, Jeneson A, Andersen T et al. Designing tailored Internet support to assist cancer patients in illness management. AMIA 2007;Annual:Symposium 9.
  • 12
    Couper J, Bloch S, Love A, Macvean M, Duchesne GM, Kissane D. Psychosocial adjustment of female partners of men with prostate cancer: a review of the literature. Psycho-Oncology 2006;15(11):937953.
  • 13
    Swore Fletcher BA, Dodd MJ, Schumacher KL, Miaskowski C. Symptom experience of family caregivers of patients with cancer. Oncol Nurs Forum 2008;35(2):2344.
  • 14
    Hanratty B, Holland P, Jacoby A, Whitehead M. Financial stress and strain associated with terminal cancer—a review of the evidence. Palliat Med 2007;21(7):595607.
  • 15
    Harden J. Developmental life stage and couples' experiences with prostate cancer: a review of the literature. Cancer Nurs 2005;28(2):8598.
  • 16
    Hearson B, McClement S. Sleep disturbance in family caregivers of patients with advanced cancer. Int J Palliat Nurs 2007;13(10):495501.
  • 17
    Kitrungroter L, Cohen MZ. Quality of life of family caregivers of patients with cancer: a literature review. Oncol Nurs Forum 2006;(3):625632.
  • 18
    Kotkamp-Mothes N, Slawinsky D, Hindermann S, Strauss B. Coping and psychological well being in families of elderly cancer patients. Crit Rev Oncol Hemat 2005;55(3):213229.
  • 19
    Laizner AM, Yost LM, Barg FK, McCorkle R. Needs of family caregivers of persons with cancer: a review. Semin Oncol Nurs 1993;9(2):114120.
  • 20
    Le T, Leis A, Pahwa P, Wright K, Ali K, Reeder B. Quality-of-life issues in patients with ovarian cancer and their caregivers: a review. Obstet Gynecol Surv 2003;58(11):749758.
  • 21
    Mosher CE, noff-Burg S. Psychosocial impact of parental cancer in adulthood: a conceptual and empirical review. Clin Psychol Rev 2005;25(3):365382.
  • 22
    Nijboer C, Tempelaar R, Sanderman R, Triemstra M, Spruijt RJ, van den Bos GAM. Cancer and caregiving: the impact on the caregiver's health. Psycho-Oncology 1998;7(1):313.
  • 23
    Resendes LA, McCorkle R. Spousal responses to prostate cancer: an integrative review. Cancer Invest 2006;24(2):192198.
  • 24
    Zhang B, El-Jawahri A, Prigerson HG. Update on bereavement research: evidence-based guidelines for the diagnosis and treatment of complicated bereavement. J Palliat Med 2006;9(5):11881203.
  • 25
    Hudson PL, Hayman-White K, Aranda S, Kristjanson LJ. Predicting family caregiver sychosocial functioning in palliative care. J Palliat Care 2006;22(3):133140.
  • 26
    Borneman T. Caring for cancer patients at home: the effect on family caregivers. Home Health Care Manag Pract 1998;10(4):2533.
  • 27
    Given BA, Given CW, Kozachik S. Family support in advanced cancer. CA: Cancer J Clin 2001;51(4):213231.
  • 28
    Glajchen M. The emerging role and needs of family caregivers in cancer care. J Supportive Oncol 2004;2(2):145155.
  • 29
    Hardwick C, Lawson N. The information and learning needs of the caregiving family of the adult patient with cancer. Eur J Cancer Care 1995;4(3):118121.
  • 30
    Lewis FM. The effects of cancer survivorship on families and caregivers. More research is needed on long-term survivors. Am J Nurs 2006;106(3 Suppl 5):.
  • 31
    Morris SM, Thomas C. The need to know: informal carers and information. Eur J Cancer Care 2002;11(3):183187.
  • 32
    Northouse LL. Helping families of patients with cancer. Oncol Nurs Forum 2005;32(4):743750.
  • 33
    Rabow MW, Hauser JM, Adams J. Supporting family caregivers at the end of life: ‘They Don't Know What They Don't Know’. JAMA 2004;291(4):483491.
  • 34
    Sales E. Psychosocial impact of the phase of cancer on the family: an updated review. J Psychosoc Oncol 1991;9(4):118.
  • 35
    Schumacher KL, Stewart BJ, Archbold PG, Dodd MJ, Dibble SL. Family caregiving skill: development of the concept. Res Nurs Health 2000;23(3):191203.
  • 36
    Schumacher KL, Stewart BJ, Archbold PG, Caparro M, Mutale F, Agrawal S. Effects of caregiving demand, mutuality, and preparedness on family caregiver outcomes during cancer treatment. Oncol Nurs Forum 2008;(1):4956.
  • 37
    Schumacher KL, Beidler SM, Beeber AS, Gambino P. A transactional model of cancer family caregiving skill. Adv Nurs Sci 2006;29(3):271286.
  • 38
    Sherwood P, Given B, Given C, Schiffman R, Murman D, Lovely M. Caregivers of persons with a brain tumor: a conceptual model. Nurs Inq 2004;11(1):4353.
  • 39
    Weitzner MA, Haley WE, Chen H. The family caregiver of the older cancer patient. Hematol Oncol Clin N 2000;14(1):269281.
  • 40
    Wochna V. Anxiety, needs, and coping in family members of the bone marrow transplant patient. Cancer Nurs 1997;20(4):244250.
  • 41
    Mor V, Allen S, Malin M. The psychosocial impact of cancer on older versus younger patients and their families. Cancer 1994;74(7 Suppl 27):.
  • 42
    Wideheim AK, Edvardsson T, Pahlson A, Ahlstrom G. A family's perspective on living with a highly malignant brain tumor. Cancer Nurs 2002;25(3):236244.
  • 43
    Carter PA. Family caregivers' sleep loss and depression over time. Cancer Nurs 2003;26(4):253259.
  • 44
    Fletcher BS, Paul SM, Dodd MJ et al. Prevalence, severity, and impact of symptoms on female family caregivers of patients at the initiation of radiation therapy for prostate cancer. J Clini Oncol 2008;26(4):599605.
  • 45
    Given BA, Given CW, Helms E, Stommel M, DeVoss DN. Determinants of family care giver reaction. New and recurrent cancer. Cancer Pract 1997;5(1):1724.
  • 46
    Jensen S, Given BA. Fatigue affecting family caregivers of cancer patients. Cancer Nurs 1991;14(4):181187.
  • 47
    Miaskowski C, Kragness L, Dibble S, Wallhagen M. Differences in mood states, health status, and caregiver strain between family caregivers of oncology outpatients with and without cancer-related pain. J Pain Symptom Manag 1997;13(3):138147.
  • 48
    Teel CS, Press AN. Fatigue among elders in caregiving and noncaregiving roles. Western J Nurs Res 1999;21(4):498520.
  • 49
    Coristine M, Crooks D, Grunfeld E, Stonebridge C, Christie A. Caregiving for women with advanced breast cancer. Psycho-Oncology 2003;12(7):709719.
  • 50
    Boyle D, Blodgett L, Gnesdiloff S et al. Caregiver quality of life after autologous bone marrow transplantation. Cancer Nurs 2000;23(3):193203.
  • 51
    Swanberg JE. Making it work: informal caregiving, cancer, and employment. J Psychosoc Oncol 2006;24(3):118.
  • 52
    Bishop MM, Beaumont JL, Hahn EA et al. Late effects of cancer and hematopoietic stem-cell transplantation on spouses or partners compared with survivors and survivor-matched controls. J Clin Oncol 2007;25(11):14031411.
  • 53
    Clavarino AM, Lowe JB, Carmont SA, Balanda K. The needs of cancer patients and their families from rural and remote areas of Queensland. Aust J Rural Health 2002;10(4):188195.
  • 54
    Ferrell B, Ervin K, Smith S, Marek T, Melancon C. Family perspectives of ovarian cancer. Cancer Pract 2002;10(6):269276.
  • 55
    Ferrell BR, Grant M, Borneman T, Juarez G, Ter Veer A. Family caregiving in cancer pain management. J Palliat Med 1999;2(2):185195.
  • 56
    Rossi FS, Zotti AM, Massara G, Nuvolone G. A comparative assessment of psychological and psychosocial characteristics of cancer patients and their caregivers. Psycho-Oncology 2003;12(1):17.
  • 57
    Stetz KM, Brown MA. Physical and psychosocial health in family caregiving: a comparison of AIDS and cancer caregivers. Public Health Nurs 2004;21(6):533540.
  • 58
    Grbich C, Parker D, Maddocks I. The emotions and coping strategies of caregivers of family members with a terminal cancer. J Palliat Care 2001;17(1):3036.
  • 59
    Schubart JR, Kinzie MB, Farace E. Caring for the brain tumor patient: family caregiver burden and unmet needs. Neuro-Oncol 2008;10(1):6172.
  • 60
    Aslan O, Kav S, Meral C et al. Needs of lay caregivers of bone marrow transplant patients in Turkey: a multicenter study. Cancer Nurs 2006;29(6):E1E7.
  • 61
    Brown MA, Stetz K. The labor of caregiving: a theoretical model of caregiving during potentially fatal illness. Qual Health Res 1999;9(2):182197.
  • 62
    Grbich C, Parker D, Maddocks I. Communication and information needs of care-givers of adult family members at diagnosis and during treatment of terminal cancer. Prog Palliat Care 2000;8(6):345350.
  • 63
    Janda M, Eakin EG, Bailey L, Walker D, Troy K. Supportive care needs of people with brain tumours and their carers. Support Care Cancer 2006;14(11):10941103.
  • 64
    Lin WC, Tsao CJ. Information needs of family caregivers of terminal cancer patients in Taiwan. Am J Hosp Palliat Care 2004;21(6):438444.
  • 65
    Wilkes L, White K, O'Riordan L. Empowerment through information: supporting rural families of oncology patients in palliative care. Aust J Rural Health 2000;8(1):4146.
    Direct Link:
  • 66
    Sherwood PR, Given BA, Doorenbos AZ, Given CW. Forgotten voices: lessons from bereaved caregivers of persons with a brain tumour. Int J Palliat Nurs 1975;10(2):6775.
  • 67
    Beaver K, Witham G. Information needs of the informal carers of women treated for breast cancer. Eur J Oncol Nurs 2007;11(1):1625.
  • 68
    Northouse LL, Schafer JA, Tipton J, Metivier L. The concerns of patients and spouses after the diagnosis of colon cancer: a qualitative analysis. J WOCN 1999;26(1):817.
  • 69
    Carter PA. A not-so-silent cry for help. Older female cancer caregivers' need for information. J Holistic Nurs 2001;19(3):271284.
  • 70
    Given B, Given CW. Patient and family caregiver reaction to new and recurrent breast cancer. J Am Med Women Assoc 1992;47(5):201206.
  • 71
    Dumont S, Turgeon J, Allard P, Gagnon P, Charbonneau C, Vezina L. Caring for a loved one with advanced cancer: determinants of psychological distress in family caregivers. J Palliat Med 2006;9(4):912921.
  • 72
    Mystakidou K, Tsilika E, Parpa E, Galanos A, Vlahos L. Caregivers of advanced cancer patients: feelings of hopelessness and depression. Cancer Nurs 2007;30(5):412418.
  • 73
    Oldham L, Kristjanson LJ, Ng C, White K, Wilkes L. Female relatives' experiences of testicular cancer. Aust J Cancer Nurs 2006;7(1):1824.
  • 74
    Kim Y, Baker F, Spillers RL. Cancer caregivers' quality of life: effects of gender, relationship, and appraisal. J Pain Symptom Manag 2007;34(3):294304.
  • 75
    Kim Y, Schulz R, Carver CS. Benefit finding in the cancer caregiving experience. Psychosom Med 2007;69(3):283291.
  • 76
    Rose KE. Perceptions related to time in a qualitative study of informal carers of terminally ill cancer patients. J Clin Nurs 1998;7(4):343350.
  • 77
    Bakas T, Lewis RR, Parsons JE. Caregiving tasks among family caregivers of patients with lung cancer. Oncol Nurs Forum 2001;28(5):847854.
  • 78
    Carey PJ, Oberst MT, McCubbin MA, Hughes SH. Appraisal and caregiving burden in family members caring for patients receiving chemotherapy. Oncol Nurs Forum 1991;18(8):13411348.
  • 79
    Oberst MT, Thomas SE, Gass KA, Ward SE. Caregiving demands and appraisal of stress among family caregivers. Cancer Nurs 1989;12(4):209215.
  • 80
    Goldstein NE, Concato J, Fried TR, Kasl SV, Hurzeler RJ, Bradley EH. Factors associated with caregiver burden among caregivers of terminally ill patients with cancer. J Palliat Care 2004;20(1):3843.
  • 81
    Carter PA. Caregivers' descriptions of sleep changes and depressive symptoms. Oncol Nurs Forum 2002;(9):12771283.
  • 82
    Case P. Social opportunity in the face of cancer: understanding the burden of the extended caregiver network. Illness, Crisis Loss 2006;14(4):299318.
  • 83
    Ferrell B, Ervin K, Smith S, Marek T, Melancon C. Family perspectives of ovarian cancer. Cancer Pract 2002;10(6):269276.
  • 84
    Grbich CF, Maddocks I, Parker D. Family caregivers, their needs, and home-based palliative cancer services. J Fam Stud 2001;7(2):171188.
  • 85
    Harden J, Schafenacker A, Northouse L et al. Couples' experiences with prostate cancer: focus group research. Oncol Nurs Forum 2002;(4):701709.
  • 86
    Houldin AD. A qualitative study of caregivers' experiences with newly diagnosed advanced colorectal cancer. Oncol Nurs Forum 2007;34(2):323330.
  • 87
    Lethborg CE, Kissane D, Burns WI. ‘It's not the easy part’: the experience of significant others of women with early stage breast cancer at treatment completion. Soc Work Health Care 2003;37(1):6385.
  • 88
    Teschendorf B, Schwartz C, Ferrans CE, O'Mara A, Novotny P, Sloan J. Caregiver role stress: when families become providers. Cancer Control 2007;14(2):183189.
  • 89
    Thomas C, Morris SM, Harman JC. Companions through cancer: the care given by informal carers in cancer contexts. Soc Sci Med 2002;54(4):529544.
  • 90
    Given B, Wyatt G, Given C et al. Burden and depression among caregivers of patients with cancer at the end of life. Oncol Nurs Forum 2004;(6):11051117.
  • 91
    Stetz KM, Brown MA. Physical and psychosocial health in family caregiving: a comparison of AIDS and cancer caregivers. Public Health Nurs 2004;21(6):533540.
  • 92
    Nijboer C, Triemstra M, Tempelaar R, Sanderman R, Van Den Bos GAM. Determinants of caregiving experiences and mental health of partners of cancer patients. Cancer 1999;86(4):577588.
  • 93
    Aranda SK, Hayman-White K. Home caregivers of the person with advanced cancer: an Australian perspective. Cancer Nurs 2001;24(4):300307.
  • 94
    Borneman T, Chu DZ, Wagman L et al. Concerns of family caregivers of patients with cancer facing palliative surgery for advanced malignancies. Oncol Nurs Forum 2003;(6):9971005.
  • 95
    Braun M, Mikulincer M, Rydall A, Walsh A, Rodin G. Hidden morbidity in cancer: spouse caregivers. J Clin Oncol 2007;25(30):48294834.
  • 96
    Carter PA, Acton GJ. Personality and coping: predictors of depression and sleep problems among caregivers of individuals who have cancer. J Gerontol Nurs 2006;32(2):4553.
  • 97
    Carter PA, Chang BL. Sleep and depression in cancer caregivers. Cancer Nurs 2000;23(6):410415.
  • 98
    Chan CW, Chang AM. Stress associated with tasks for family caregivers of patients with cancer in Hong Kong. Cancer Nurs 1999;22(4):260265.
  • 99
    Chang EWC, Tsai Y-Y, Chang T-W, Tsao C-J. Quality of sleep and quality of life in caregivers of breast cancer patient. Psycho-Oncology 2007;16(10):950955.
  • 100
    Chen M-L, Chu L, Chen H-C. Impact of cancer patients' quality of life on that of spouse caregivers. Support Care Cancer 2004;12(7):469475.
  • 101
    Cho MH, Dodd MJ, Lee KA, Padilla G, Slaughter R. Self-reported sleep quality in family caregivers of gastric cancer patients who are receiving chemotherapy in Korea. J Cancer Educ 2006;21(1 Suppl 41):.
  • 102
    Doorenbos AZ, Given B, Given CW et al. The influence of end-of-life cancer care on caregivers. Res Nurs Health 2007;30(3):270281.
  • 103
    Flaskerud JH, Carter PA, Lee P. Distressing emotions in female caregivers of people with AIDS, age-related dementias, and advanced-stage cancers. Perspect Psychiatr Care 2000;36(4):121130.
  • 104
    Fleming DA, Sheppard VB, Mangan PA et al. Caregiving at the end of life: perceptions of health care quality and quality of life among patients and caregivers. J Pain Symptom Manag 2006;31(5):407420.
  • 105
    Foxall MJ, Gaston-Johansson F. Burden and health outcomes of family caregivers of hospitalized bone marrow transplant patients. J Adv Nurs 1996;24(5):915923.
  • 106
    Gaston-Johansson F, Lachica EM, Fall-Dickson JM, Kennedy MJ. Psychological distress, fatigue, burden of care, and quality of life in primary caregivers of patients with breast cancer undergoing autologous bone marrow transplantation. Oncol Nurs Forum 2004;(6):11611169.
  • 107
    Gilbar O. Gender as a predictor of burden and psychological distress of elderly husbands and wives of cancer patients. Psycho-Oncology 1999;8(4):287294.
  • 108
    Gilbar O. Parent caregiver adjustment to cancer of an adult child. J Psychosom Res 2002;52(5):295302.
  • 109
    Given CW, Stommel M, Given B, Osuch J, Kurtz ME, Kurtz JC. The influence of cancer patients' symptoms and functional states on patients' depression and family caregivers' reaction and depression. Health Psychol 1993;12(4):277285.
  • 110
    Gozum S, Akcay D. Response to the needs of Turkish chemotherapy patients and their families. Cancer Nurs 2005;28(6):469475.
  • 111
    Grinyer A. Caring for a young adult with cancer: the impact on mothers' health. Health Soc Care Commun 2006;14(4):311318.
  • 112
    Grov EK, Dahl AA, Moum T, Fossa SD. Anxiety, depression, and quality of life in caregivers of patients with cancer in late palliative phase. Ann Oncol 2005;16(7):11851191.
  • 113
    Grunfeld E, Coyle D, Whelan T et al. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. Can Med Assoc J 2004;170(12):17951801.
  • 114
    Hagedoorn M, Buunk BP, Kuijer RG, Wobbes T, Sanderman R. Couples dealing with cancer: role and gender differences regarding psychological distress and quality of life. Psycho-Oncology 2000;9(3):232242.
  • 115
    Haley WE, LaMonde LA, Han B, Narramore S, Schonwetter R. Family caregiving in hospice: effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia. Hospice J 2001;15(4):118.
  • 116
    Haley WE, LaMonde LA, Han B, Burton AM, Schonwetter R. Predictors of depression and life satisfaction among spousal caregivers in hospice: application of a stress process model. J Palliat Med 2003;6(2):215224.
  • 117
    Harding R, Higginson IJ, Donaldson N. The relationship between patient characteristics and carer psychological status in home palliative cancer care. Support Care Cancer 2003;11(10):638643.
  • 118
    Hileman JW, Lackey NR. Self-identified needs of patients with cancer at home and their home caregivers: a descriptive study. Oncol Nurs Forum 1990;17(6):907913.
  • 119
    Janda M, Steginga S, Dunn J, Langbecker D, Walker D, Eakin E. Unmet supportive care needs and interest in services among patients with a brain tumour and their carers. Patient Educ Couns 2008;71(2):251258.
  • 120
    Juarez G, Ferrell B, Uman G. Distress and quality of life concerns of family caregivers of patients undergoing palliative surgery. Oncol Nurs Forum 2007;34(1):222.
  • 121
    Kim Y, Duberstein PR, Sorensen S, Larson MR. Levels of depressive symptoms in spouses of people with lung cancer: effects of personality, social support, and caregiving burden. Psychosomatics 2005;46(2):123130.
  • 122
    Kim Y, Loscalzo MJ, Wellisch DK, Spillers RL. Gender differences in caregiving stress among caregivers of cancer survivors. Psycho-Oncology 2006;15(12):10861092.
  • 123
    Kim Y, Baker F, Spillers RL, Wellisch DK. Psychological adjustment of cancer caregivers with multiple roles. Psycho-Oncology 2006;15(9):795804.
  • 124
    Kurtz ME, Kurtz JC, Given CW, Given B. Relationship of caregiver reactions and depression to cancer patients' symptoms, functional states and depression—a longitudinal view. Soc Sci Med 1995;40(6):837846.
  • 125
    Kurtz ME, Kurtz JC, Given CW, Given BA. Depression and physical health among family caregivers of geriatric patients with cancer—a longitudinal view. Med Sci Monitor 2004;10(8):CR447CR456.
  • 126
    Lev EL, Owen SV. Association of cancer patients' quality of life, symptoms, moods, and self-care self-efficacy with family care givers' depression, reaction and health. Self-Care, Dependent-Care, Nursing 2002;10(2):312.
  • 127
    Mangan PA, Taylor KL, Yabroff KR, Fleming DA, Ingham JM. Caregiving near the end of life: unmet needs and potential solutions. Palliat Support Care 2003;1(3):247259.
  • 128
    Matthews BA, Baker F, Spillers RL. Family caregivers' quality of life: influence of health protective stance and emotional strain. Psychol Health 2004;19(5):625641.
  • 129
    Matthews BA, Baker F, Spillers RL. Family caregivers and indicators of cancer-related distress. Psychol Health Med 2003;8(1):4556.
  • 130
    Matthews BA. Role and gender differences in cancer-related distress: a comparison of survivor and caregiver self-reports. Oncol Nurs Forum 2003;(3):493499.
  • 131
    Mellon S, Northouse LL, Weiss LK. A population-based study of the quality of life of cancer survivors and their family caregivers. Cancer Nurs 2006;29(2):120133.
  • 132
    Mok E, Chan F, Chan V, Yeung E. Family experience caring for terminally ill patients with cancer in Hong Kong. Cancer Nurs 2003;26(4):267275.
  • 133
    Nijboer C, Tempelaar R, Triemstra M, Sanderman R, van den Bos GAM. Dynamics in cancer caregiver's health over time: gender-specific patterns and determinants. Psychol Health 2001;16(4):471488.
  • 134
    Northouse LL, Mood D, Kershaw T et al. Quality of life of women with recurrent breast cancer and their family members. J Clin Oncol 2002;20(19):40504064.
  • 135
    Northouse LL, Mood DW, Montie JE et al. Living with prostate cancer: patients' and spouses' psychosocial status and quality of life. J Clin Oncol 2007;25(27):41714177.
  • 136
    Ohaeri JU, Campbell OB, Ilesanmi AO, Omigbodun AO. The psychosocial burden of caring for some Nigerian women with breast cancer and cervical cancer. Soc Sci Med 1999;49(11):15411549.
  • 137
    Ohaeri JU, Shokunbi WA. Psychosocial burden of sickle cell disease on caregivers in a Nigerian setting. J Natl Med Assoc 2002;94(12):10581070.
  • 138
    Osse BHP, Vernooij-Dassen MJF, Schade E, Grol RPT. Problems experienced by the informal caregivers of cancer patients and their needs for support. Cancer Nurs 2006;29(5):378390.
  • 139
    Passik SD, Kirsh KL. A pilot examination of the impact of cancer patients' fatigue on their spousal caregivers. Palliat Support Care 2005;3(4):273279.
  • 140
    Hileman JW, Lackey NR, Hassanein RS. Identifying the needs of home caregivers of patients with cancer. Oncol Nurs Forum 1992;19(5):771777.
  • 141
    Payne S, Smith P, Dean S. Identifying the concerns of informal carers in palliative care. Palliat Med 1999;13(1):3744.
  • 142
    Phipps E, Braitman LE, True G, Harris D, Tester W. Family care giving for patients at life's end: report from the cultural variations study (CVAS). Palliat Support Care 2003;1(2):165170.
  • 143
    Pitceathly C, Maguire P, Haddad P, Fletcher I. Prevalence of and markers for affective disorders among cancer patients among cancer patients' caregivers. J Psychosoc Oncol 2004;22(3):4568.
  • 144
    Raveis VH, Karus D, Pretter S. Correlates of anxiety among adult daughter caregivers to a parent with cancer. J Psychosoc Oncol 1999;17(3–4):126.
  • 145
    Raveis VH, Pretter S. Existential plight of adult daughters following their mother's breast cancer diagnosis. Psycho-Oncology 2005;14(1):4960.
  • 146
    Rodrigue JR, Hoffmann RGI. Caregivers of adults with cancer: multidimensional correlates of psychological distress. J Clin Psychol Med S 1994;1(3):231244.
  • 147
    Sano T, Maeyama E, Kawa M et al. Family caregiver's experiences in caring for a patient with terminal cancer at home in Japan. Palliat Support Care 2007;5(4):389395.
  • 148
    Sarna L, Cooley ME, Brown JK et al. Quality of life and health status of dyads of women with lung cancer and family members. Oncol Nurs Forum 2006;33(6):11091116.
  • 149
    Schumacher KL. The stress process in family caregivers of persons receiving chemotherapy. Res Nurs Health 1993;404:395404.
  • 150
    Sherwood PR, Given BA, Given CW et al. Predictors of distress in caregivers of persons with a primary malignant brain tumor. Res Nurs Health 2006;29(2):105120.
  • 151
    Soothill K, Morris SM, Harman JC, Francis B, Thomas C, McIllmurray MB. Informal carers of cancer patients: what are their unmet psychosocial needs? Health Soc Care Community 2001;9(6):464475.
  • 152
    Soothill K, Morris SM, Thomas C, Harman JC, Francis B, McIllmurray MB. The universal, situational, and personal needs of cancer patients and their main carers. Eur J Oncol Nurs 2003;7(1):513.
  • 153
    Stetz KM, Brown MA. Taking care: caregiving to persons with cancer and AIDS. Cancer Nurs 1997;20(1):1222.
  • 154
    Tang ST, Li CY, Liao YC. Factors associated with depressive distress among Taiwanese family caregivers of cancer patients at the end of life. Palliat Med 2007;21(3):249257.
  • 155
    Verdonck-de LI, Eerenstein SE, Van der Linden MH, Kuik DJ, de BR, Leemans CR. Distress in spouses and patients after treatment for head and neck cancer. Laryngoscope 2007;117(2):238241.
  • 156
    Weitzner MA, McMillan SC, Jacobsen PB. Family caregiver quality of life: differences between curative and palliative cancer treatment settings. J Pain Symptom Manag 1999;17(6):418428.
  • 157
    Yun YH, Rhee YS, Kang IO et al. Economic burdens and quality of life of family caregivers of cancer patients. Oncology 2005;68(2–3):107114.
  • 158
    Clayton JM, Butow PN, Tattersall MH. The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer 2005;103(9):19571964.
  • 159
    Fukui S. Information needs and the related characteristics of Japanese family caregivers of newly diagnosed patients with cancer. Cancer Nurs 2002;25(3):181186.
  • 160
    Harrington V, Lackey NR, Gates MF. Needs of caregivers of clinic and hospice cancer patients. Cancer Nurs 1996;19(2):118125.
  • 161
    Hinds C. Suffering: a relatively unexplored phenomenon among family caregivers of non-institutionalized patients with cancer. J Adv Nurs 1992;17(8):918925.
  • 162
    Hull MM. Sources of stress for hospice caregiving families. Hospice J 1990;6(2):2954.
  • 163
    Hwang SS, Chang VT, Alejandro Y et al. Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical center. Palliat Support Care 2003;1(4):319329.
  • 164
    Kalnins I. Caring for the terminally ill: experiences of Latvian family caregivers. Int Nurs Rev 2006;53(2):129135.
  • 165
    Ko CM, Malcarne VL, Varni JW et al. Problem-solving and distress in prostate cancer patients and their spousal caregivers. Support Care Cancer 2005;13(6):367374.
  • 166
    Lauzier S, Maunsell E, De Koninck M et al. Conceptualization and sources of costs from breast cancer: findings from patient and caregiver focus groups. Psycho-Oncology 2005;14(5):351360.
  • 167
    Lindholm L, Makela C, Rantanen-Siljamaki S, Nieminen AL. The role of significant others in the care of women with breast cancer. Int J Nurs Prac 2007;13(3):173181.
  • 168
    Loke AY, Liu CF, Szeto Y. The difficulties faced by informal caregivers of patients with terminal cancer in Hong Kong and the available social support. Cancer Nurs 2003;26(4):276283.
  • 169
    Meissner HI, Anderson DM, Odenkirchen JC. Meeting information needs of significant others: use of the Cancer Information Service. Patient Educ Couns 1990;15(2):171179.
  • 170
    Milberg A, Strang P, Jakobsson M. Next of kin's experience of powerlessness and helplessness in palliative home care. Support Care Cancer 2004;12(2):120128.
  • 171
    Nikoletti S, Kristjanson LJ, Tataryn D, McPhee I, Burt L. Information needs and coping styles of primary family caregivers of women following breast cancer surgery. Oncol Nurs Forum 2003;30(6):987996.
  • 172
    Wennman-Larsen A, Tishelman C. Advanced home care for cancer patients at the end of life: a qualitative study of hopes and expectations of family caregivers. Scand J Caring Sci 2002;16(3):240247.
  • 173
    Williams LA. Whatever it takes: informal caregiving dynamics in blood and marrow transplantation. Oncol Nurs Forum 2007;34(2):379387.
  • 174
    Wong RK, Franssen E, Szumacher E et al. What do patients living with advanced cancer and their carers want to know? A needs assessment. Support Care Cancer 2002;10(5):408415.
  • 175
    Andrews SC. Caregiver burden and symptom distress in people with cancer receiving hospice care. Oncol Nurs Forum 2001;28(9):14691474.
  • 176
    Bernard LL, Guarnaccia CA. Two models of caregiver strain and bereavement adjustment: a comparison of husband and daughter caregivers of breast cancer hospice patients. Gerontologist 2003;43(6):808816.
  • 177
    Blood GW, Simpson KC, Dineen M, Kauffman SM, Raimondi SC. Spouses of individuals with laryngeal cancer: caregiver strain and burden. J Commun Disord 1994;27(1):1935.
  • 178
    Chan CWH, Chang AM. Managing caregiver tasks among family caregivers of cancer patients in Hong Kong. J Adv Nurs 1999;29(2):484489.
  • 179
    Gaugler JE, Hanna N, Linder J et al. Cancer caregiving and subjective stress: a multi-site, multidimensional analysis. Psycho-Oncology 2005;14(9):771785.
  • 180
    Keefe FJ, Ahles TA, Porter LS et al. The self-efficacy of family caregivers for helping cancer patients manage pain at end-of-life. Pain 2003;103(1–2):157162.
  • 181
    Lowenstein A, Gilbar O. The perception of caregiving burden on the part of elderly cancer patients, spouses and adult children. Fam Syst Health 2000;18(3):337346.
  • 182
    Nijboer C, Triemstra M, Tempelaar R, Mulder M, Sanderman R, Bos GAM. Patterns of caregiver experiences among partners of cancer patients. Gerontologist 2000;40(6):738746.
  • 183
    Scherbring M. Effect of caregiver perception of preparedness on burden in an oncology population. Oncol Nurs Forum 2002;(6):E70E76.
  • 184
    Schott-Baer D, Fisher L, Gregory C. Dependent care, caregiver burden, hardiness, and self-care agency of caregivers. Cancer Nurs 1995;18(4):299305.
  • 185
    Siegel K, Raveis VH, Houts P, Mor V. Caregiver burden and unmet patient needs. Cancer 1991;68(5):11311140.
  • 186
    Siegel K, Raveis VH, Mor V, Houts P. The relationship of spousal caregiver burden to patient disease and treatment-related conditions. Ann Oncol 1991;2(7):511516.
  • 187
    Silveira JM, Winstead-Fry P. The needs of patients with cancer and their caregivers in rural areas. Oncol Nurs Forum 1997;24(1):7176.
  • 188
    Cameron JI, Franche RL, Cheung AM, Stewart DE. Lifestyle interference and emotional distress in family caregivers of advanced cancer patients. Cancer 2002;94(2):521527.
  • 189
    Hagedoorn M, Sanderman R, Buunk BP, Wobbes T. Failing in spousal caregiving: the identity-relevant stress' hypothesis to explain sex differences in caregiver distress. Br J Health Psychol 2002;7(4):481494.
  • 190
    Iconomou G, Viha A, Kalofonos HP, Kardamakis D. Impact of cancer on primary caregivers of patients receiving radiation therapy. Acta Oncol 2001;40(6):766771.
  • 191
    Kim Y, Carver CS, Deci EL, Kasser T. Adult attachment and psychological well-being in cancer caregivers: the mediational role of spouses' motives for caregiving. Health Psychol 2008;27(2):144154.
  • 192
    Lissandrello G, Respini D, Tralongo P. Latent troubles of a cancer patient's caregiver. Support Palliat Cancer Care 2006;2(3):123126.
  • 193
    Raveis VH, Karus DG, Siegel K. Correlates of depressive symptomatology among adult daughter caregivers of a parent with cancer. Cancer 1998;83(8):16521663.
  • 194
    Segrin C, Badger T, Sieger A, Meek P, Lopez AM. Interpersonal well-being and mental health among male partners of women with breast cancer. Iss Ment Health Nurs 2006;27(4):371389.
  • 195
    Segrin C, Badger TA, Meek P, Lopez AM, Bonham E, Sieger A. Dyadic interdependence on affect and quality-of-life trajectories among women with breast cancer and their partners. J Soc Pers Relat 2005;22(5):673689.
  • 196
    Vega BR, Villalobos AO, Tarrero AP, Avedillo C, Sanchez-Cabezudo A, Chinchilla C. Anxiety and depression symptoms in a Spanish oncologic sample and their caregivers. Eur J Psychiat 2002;16(1):2737.
  • 197
    Awadalla AW, Ohaeri JU, Gholoum A, Khalid AO, Hamad HM, Jacob A. Factors associated with quality of life of outpatients with breast cancer and gynecologic cancers and their family caregivers: a controlled study. BMC Cancer 2007;7:102.
  • 198
    Axelsson B, Sjoden PO. Quality of life of cancer patients and their spouses in palliative home care. Palliat Med 1998;12(1):2939.
  • 199
    Le T, Leis A, Pahwa P et al. Quality of life evaluations of caregivers of ovarian cancer patients during chemotherapy treatment. JOGC 2004;26(7):627631.
  • 200
    McMillan SC. Quality of life of primary caregivers of hospice patients with cancer. Cancer Pract 1996;(4):191198.
  • 201
    Wagner CD, Bigatti SM, Storniolo AM. Quality of life of husbands of women with breast cancer. Psycho-Oncol 2006;15(2):109120.