‘It's all bad news’: the first 3 months following a diagnosis of malignant pleural mesothelioma
Version of Record online: 18 AUG 2012
Copyright © 2012 John Wiley & Sons, Ltd.
Volume 22, Issue 7, pages 1528–1533, July 2013
How to Cite
Arber, A. and Spencer, L. (2013), ‘It's all bad news’: the first 3 months following a diagnosis of malignant pleural mesothelioma. Psycho-Oncology, 22: 1528–1533. doi: 10.1002/pon.3162
- Issue online: 5 JUL 2013
- Version of Record online: 18 AUG 2012
- Manuscript Accepted: 25 JUL 2012
- Manuscript Revised: 17 JUL 2012
- Manuscript Received: 29 FEB 2012
- pleural mesothelioma;
- psychosocial care;
- grounded theory;
- terminal illness;
This study explores patient's experience during the first 3 months following a diagnosis of malignant pleural mesothelioma.
This study uses a grounded theory approach with semi-structured, face-to-face interviews with 10 patients during the first 3 months following diagnosis.
The key concept that emerged from the data was this: Uncertainty and lack of control leading to emotional, physical and psychosocial distress. Three themes informed the key concept: ‘ it's all bad news’, ‘good and bad days’ and strategies of amelioration. Patients worked with a short-term perspective on their illness but worried about the long-term outcome and the speed of their deterioration.
Patients receive insufficient psychosocial support during the first 3 months following diagnosis. An early palliative care referral would improve support and referral strategies during the first 3 months of the disease. Copyright © 2012 John Wiley & Sons, Ltd.