“LTV Pediatric Italian Network”: Anna Costantino, Alessandria; Raffaella Pagni, Ancona; Anna Maria Miorelli, Arco; Paolo Castaldi, Cagliari; Mariano Cabras, Carbonia; Bruno Dengo, Castelfranco Veneto; Augusto Biasini, Cesena; Francesco Morandi, Erba; Carlo Minetti, Giancarlo Ottonello, Genova; Paolo Banfi, Maurizio Bonati, Edoardo Calderini, Edi Prandi, Ida Salvo, Marco Sequi, Andrea Wolfler, Marco Zucconi, Milano; Giuseppe Fiorentino, Antonio Maddalena, Raffaele Testa, Napoli; Grazia Crescimanno, Anna Guddo, Palermo; Livio Carnevale, Pavia; Andrea Vianello, Padova; Giancarlo Piccinini, Ravenna; Valter Bottari, Reggio Emilia; Maurizio Corbari, Renato Cutrera, Martino Pavone, Roma; Giacomo Berta, Elisabetta Bignamini, Elena Capello, Lorenzo Del Sorbo, Cesare Gregoretti, Maria Maspoli, Fabrizio Racca, Marco V. Ranieri, Torino; Antonio Peratoner, Udine; Monica Benedetti, Verona.
Long-term home ventilation of children in Italy: A national survey
Version of Record online: 30 DEC 2010
Copyright © 2011 Wiley-Liss, Inc.
Volume 46, Issue 6, pages 566–572, June 2011
How to Cite
Racca, F., Berta, G., Sequi, M., Bignamini, E., Capello, E., Cutrera, R., Ottonello, G., Ranieri, V.M., Salvo, I., Testa, R., Wolfler, A., Bonati, M. and on behalf of the “LTV Pediatric Italian Network” (2011), Long-term home ventilation of children in Italy: A national survey. Pediatr. Pulmonol., 46: 566–572. doi: 10.1002/ppul.21401
- Issue online: 10 MAY 2011
- Version of Record online: 30 DEC 2010
- Manuscript Accepted: 13 SEP 2010
- Manuscript Revised: 10 SEP 2010
- Manuscript Received: 21 MAY 2010
- none reported.
- chronic respiratory failure;
- home respiratory care;
- long term ventilation;
- home mechanical ventilation;
- artificial ventilation;
Improved technology, as well as professional and parental awareness, enable many ventilator-dependent children to live at home. However, the profile of this growing population, the quality and adequacy of home care, and patients' needs still require thorough assessment.
To define the characteristics of Italian children receiving long-term home mechanical ventilation (HMV) in Italy.
A detailed questionnaire was sent to 302 National Health Service hospitals potentially involved in the care of HVM in children (aged <17 years). Information was collected on patient characteristics, type of ventilation, and home respiratory care.
A total of 362 HMV children was identified. The prevalence was 4.2 per 100,000 (95% CI: 3.8–4.6), median age was 8 years (interquartile range 4–14), median age at starting mechanical ventilation was 4 years (1–11), and 56% were male. The most frequent diagnostic categories were neuromuscular disorders (49%), lung and upper respiratory tract diseases (18%), hypoxic (ischemic) encephalopathy (13%), and abnormal ventilation control (12%). Medical professionals with nurses (for 62% of children) and physiotherapists (20%) participated in the patients' discharge from hospital, though parents were the primary care giver, and in 47% of cases, the sole care giver. Invasive ventilation was used in 41% and was significantly related to young age, southern regional residence, longer time spent under mechanical ventilation, neuromuscular disorders, or hypoxic (ischemic) encephalopathy.
Care and technical assistance of long-term HMV children need assessment, planning, and resources. A wide variability in pattern of HMV was found throughout Italy. An Italian national ventilation program, as well as a national registry, could be useful in improving the care of these often critically ill children. Pediatr. Pulmonol. 2011; 46:566–572. © 2011 Wiley-Liss, Inc.