An earlier version of this report was presented, in part, at the National Association of Rehabilitation Research and Training Centers annual meeting, May 2009, Washington, DC.
Eliciting patient and caregiver perspectives to improve the public reporting of rehabilitation quality measures
Article first published online: 30 JAN 2013
© 2013 Association of Rehabilitation Nurses
Volume 38, Issue 1, pages 24–31, January/February 2013
How to Cite
Papadimitriou, C., Magasi, S., DeMark, H., Taylor, C., Wolf, M. S., Heinemann, A. W. and Deutsch, A. (2013), Eliciting patient and caregiver perspectives to improve the public reporting of rehabilitation quality measures. Rehabilitation Nursing, 38: 24–31. doi: 10.1002/rnj.63
No commercial party having a direct financial interest in the results of the research supporting this article has conferred or will confer a benefit upon the author(s) or upon any organization with which the author(s) is/are associated.
- Issue published online: 30 JAN 2013
- Article first published online: 30 JAN 2013
- Manuscript Accepted: 30 MAY 2012
- National Institute on Disability and Rehabilitation Research
- Rehabilitation Research and Training Center on Measuring Rehabilitation Outcomes and Effectiveness. Grant Number: H133B040032
- quality indicators;
- health care (170)
To evaluate patients' and caregivers' abilities to comprehend information on rehabilitation quality measures, and select high-quality rehabilitation facility.
We used exploratory, qualitative study using cognitive interviewing.
Three Outpatient rehabilitation facilities in metropolitan Chicago, Illinois, USA.
The study participants included 27 patients or three caregivers, 63% female; 36.7% white, 43.3% African American, 10% Asian, 10% missing/other; health literacy: 59% at the 8th grade level or lower; age range: 33–94.
Main Outcome Measure(s)
Patient and caregiver comprehension of quality measures.
Respondents understood some rehabilitation quality terms, but had difficulty with medical terminology; linking quality measures to hospital quality; explaining choice of “better” quality facility; and reading tables. The research team simplified terminology, definitions, layout, and design; added an introduction to provide a framework for understanding quality.
Quality measure information can be difficult to understand and use. When reporting quality measures, use plain language, avoid medical jargon, follow logically sequenced content, easy-to-read layout, provide framework for understanding quality, and solicit consumer feedback.