Functional independence among young adults with spina bifida, in relation to hydrocephalus and level of lesion
Article first published online: 2 MAR 2007
2006 Mac Keith Press
Developmental Medicine & Child Neurology
Volume 48, Issue 2, pages 114–119, February 2006
How to Cite
Verhoef, M., Barf, H. A., Post, M. W., van Asbeck, F. W. A., Gooskens, R. H. and Prevo, A. J. H. (2006), Functional independence among young adults with spina bifida, in relation to hydrocephalus and level of lesion. Developmental Medicine & Child Neurology, 48: 114–119. doi: 10.1017/S0012162206000259
- Issue published online: 2 MAR 2007
- Article first published online: 2 MAR 2007
- Accepted for publication 18th February 2005.
Knowledge about the level of functional independence that can be expected in adulthood might support decisions on the treatment of newborn infants with spina bifida. This study determined functional independence among young adults with spina bifida and its relationships with pathological characteristics known from birth (hydrocephalus and level of lesion). Data were collected from medical records and by physical examination. Functional independence was assessed on six domains (self-care, sphincter control, transfers, locomotion, communication, and social cognition) using the Functional Independence Measure (FIM). Participants were 165 patients with spina bifida (69 males, 96 females; age range 16 to 25y, mean 20y 9mo [SD 2.9]; 117 with hydrocephalus). Patients without hydrocephalus were independent for all FIM domains except sphincter control, as were patients with hydrocephalus with a lesion level below L2. Most patients with hydrocephalus and a lesion at L2 or above were dependent as regards sphincter control (98%), locomotion (79%), and self-care (54%), and quite a few needed support in transfers (38%), social cognition (29%), and communication (15%).