Changes in Caregiving Satisfaction and Information Needs Among Relatives of Adults With Mental Illness: Results of a Randomized Evaluation of a Family-Led Education Intervention

Authors

  • Susan A. Pickett-Schenk PhD,

    Corresponding author
    1. University of Illinois at Chicago
      Center on Mental Health Services Research and Policy, Department of Psychiatry, University of Illinois at Chicago, 1601 W. Taylor Avenue, Chicago, IL 60612. E-mail: pickett@psych.uic.edu
    Search for more papers by this author
    • 5

      Susan A. Pickett-Schenk, PhD, Cynthia Bennett, MA, Judith A. Cook, PhD, Pamela Steigman, MA, Ian Villagracia, BA, and Dennis Grey, BA, Department of Psychiatry, University of Illinois at Chicago; Richard Lippincott, MD, Department of Psychiatry, University of Arkansas for the Medical Sciences.

  • Cynthia Bennett MA,

    1. University of Illinois at Chicago
    Search for more papers by this author
    • 5

      Susan A. Pickett-Schenk, PhD, Cynthia Bennett, MA, Judith A. Cook, PhD, Pamela Steigman, MA, Ian Villagracia, BA, and Dennis Grey, BA, Department of Psychiatry, University of Illinois at Chicago; Richard Lippincott, MD, Department of Psychiatry, University of Arkansas for the Medical Sciences.

  • Judith A. Cook PhD,

    1. University of Illinois at Chicago
    Search for more papers by this author
    • 5

      Susan A. Pickett-Schenk, PhD, Cynthia Bennett, MA, Judith A. Cook, PhD, Pamela Steigman, MA, Ian Villagracia, BA, and Dennis Grey, BA, Department of Psychiatry, University of Illinois at Chicago; Richard Lippincott, MD, Department of Psychiatry, University of Arkansas for the Medical Sciences.

  • Pamela Steigman MA,

    1. University of Illinois at Chicago
    Search for more papers by this author
    • 5

      Susan A. Pickett-Schenk, PhD, Cynthia Bennett, MA, Judith A. Cook, PhD, Pamela Steigman, MA, Ian Villagracia, BA, and Dennis Grey, BA, Department of Psychiatry, University of Illinois at Chicago; Richard Lippincott, MD, Department of Psychiatry, University of Arkansas for the Medical Sciences.

  • Richard Lippincott MD,

    1. University of Arkansas for the Medical Sciences
    Search for more papers by this author
    • 5

      Susan A. Pickett-Schenk, PhD, Cynthia Bennett, MA, Judith A. Cook, PhD, Pamela Steigman, MA, Ian Villagracia, BA, and Dennis Grey, BA, Department of Psychiatry, University of Illinois at Chicago; Richard Lippincott, MD, Department of Psychiatry, University of Arkansas for the Medical Sciences.

  • Ian Villagracia BA,

    1. University of Illinois at Chicago
    Search for more papers by this author
    • 5

      Susan A. Pickett-Schenk, PhD, Cynthia Bennett, MA, Judith A. Cook, PhD, Pamela Steigman, MA, Ian Villagracia, BA, and Dennis Grey, BA, Department of Psychiatry, University of Illinois at Chicago; Richard Lippincott, MD, Department of Psychiatry, University of Arkansas for the Medical Sciences.

  • Dennis Grey BA

    1. University of Illinois at Chicago
    Search for more papers by this author
    • 5

      Susan A. Pickett-Schenk, PhD, Cynthia Bennett, MA, Judith A. Cook, PhD, Pamela Steigman, MA, Ian Villagracia, BA, and Dennis Grey, BA, Department of Psychiatry, University of Illinois at Chicago; Richard Lippincott, MD, Department of Psychiatry, University of Arkansas for the Medical Sciences.


  • This work was supported by Grant R01 MH60721 from the National Institute of Mental Health. We thank Steve Augilard, Jane Burke-Miller, Pam Cameron, Jeanne Dunne, Rhonda Norwood, and our JOH study instructors for their invaluable assistance with this project.

Center on Mental Health Services Research and Policy, Department of Psychiatry, University of Illinois at Chicago, 1601 W. Taylor Avenue, Chicago, IL 60612. E-mail: pickett@psych.uic.edu

Abstract

The authors examined changes in caregiving satisfaction and information needs among 462 relatives of individuals with mental illness who participated in a study of a family-led education course, the Journey of Hope (JOH). Participants were randomly assigned to receive JOH or to a control group waiting list and followed for 9 months. General linear model repeated measures analysis of variance found that, compared with the control group, the intervention group showed significant improvement in caregiving satisfaction and information needs following course completion and maintained these gains for another 6 months. Education and support from other family members in the form of a structured course is effective in meeting the caregiving needs of relatives of persons with mental illness.

Ancillary