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Informed Consent in Human Genetic Research

  1. Philip R Reilly

Published Online: 15 JUL 2006

DOI: 10.1038/npg.els.0005175

eLS

eLS

How to Cite

Reilly, P. R. 2006. Informed Consent in Human Genetic Research. eLS. .

Author Information

  1. Interleukin Genetics Inc., Waltham, Massachusetts, USA

Publication History

  1. Published Online: 15 JUL 2006

Abstract

Much genetic research involving human subjects is conducted to search for, or understand the role of, particular gene variants in maintaining health or causing disease. Concern that human subjects could suffer ‘informational’ harm owing to improper disclosure of research results to third parties has strongly influenced the consent process and the review of such studies by oversight committees.