Informed Consent in Human Genetic Research
Published Online: 15 JUL 2006
Copyright © 2001 John Wiley & Sons, Ltd. All rights reserved.
How to Cite
Reilly, P. R. 2006. Informed Consent in Human Genetic Research. eLS. .
- Published Online: 15 JUL 2006
Much genetic research involving human subjects is conducted to search for, or understand the role of, particular gene variants in maintaining health or causing disease. Concern that human subjects could suffer ‘informational’ harm owing to improper disclosure of research results to third parties has strongly influenced the consent process and the review of such studies by oversight committees.