Researching experiences of cancer: the importance of methodology

Authors

  • V. Entwistle phd,

  • J. Q. Tritter dphil,

  • M. Calnan phd


address: Dr V. Entwistle, Health Services Research Unit, University of Aberdeen, Polwarth Building, Foresterhill, Aberdeen AB25 2ZD, UK (e-mail: vae@hsru.abdn.ac.uk).

Researching experiences of cancer: the importance of methodology

This paper draws on contributions to and discussions at a recent MRC HSRC-sponsored workshop ‘Researching users’ experiences of health care: the case of cancer’. We focus on the methodological and ethical challenges that currently face researchers who use self-report methods to investigate experiences of cancer and cancer care. These challenges relate to: the theoretical and conceptual underpinnings of research; participation rates and participant profiles; data collection methods (the retrospective nature of accounts, description and measurement, and data collection as intervention); social desirability considerations; relationship considerations; the experiences of contributing to research; and the synthesis and presentation of findings. We suggest that methodological research to tackle these challenges should be integrated into substantive research projects to promote the development of a strong knowledge base about experiences of cancer and cancer care.

Ancillary