Paediatric care of the child with haemophilia


R. Ljung Departments of Paediatrics and Coagulation Disorders, Lund University, University Hospital, SE-205 02 Malmö, Sweden. Tel.: + 46 40331639, fax: + 46 40336226, E-mail:


The paediatric care of children with haemophilia in developed countries should focus on the health of the child, not on the disorder. Gene therapy offers the hope of an ultimate `cure' for the disorder, but until this is a viable proposition, patients should be given more control over their treatment, and the focus should be on `self-monitored and self-adjusted' prophylaxis. New instruments for measuring joint function and radiographic changes, and quality of life are valuable tools in improving the treatment of paediatric care for children with haemophilia.