Hearing the voices of children with chronic illness

Authors

  • Samantha A. Sartain BA MSc,

    1. Research Student, Faculty of Health, Social Work and Education, University of Northumbria at Newcastle, Researcher, Wirral Services for Child Health, Arrowe Park Hospital, Merseyside, England
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  • Charlotte L. Clarke RGN BA MSc PGCE PhD,

    1. Principal Lecturer (Nursing Research), Faculty of Health, Social Work and Education, University of Northumbria at Newcastle, England
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  • R. Heyman BA PhD

    1. Professor of Health and Social Services, Faculty of Health, Social Work and Education, University of Northumbria at Newcastle, England
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Sam Sartain, Researcher, Children's Services, Hospital at Home, Ward 11, Arrowe Park Hospital, Upton, Wirral, CH49 5PE, England.

Abstract

Hearing the voices of children with chronic illness

This qualitative study has aimed to explore children’s, parents’ and health professionals’ experience of childhood chronic illness. Seven families and their professional carers participated in semistrucured interviews. The children's interviews were augmented with a ‘drawing’ technique. A grounded theory approach facilitated data collection and analysis. This paper debates the perceived passivity of the voice of children in health care and research and illustrates data collection methods that seek to give children and other disadvantaged groups a voice. The children who participated in this study are described as competent interpreters of their world.

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