• The aim of this pilot project was to identify strategies for managing incontinence with women who have multiple sclerosis (MS).
• The project used the formation of a group in which eight women with MS and four Continence Nurse Advisers (CNAs) and the first author were brought together.
• In the course of the research process, the women found a voice on a topic previously thought of as taboo. When they realized that they had suffered alone and in silence they felt empowered to act.
• In this way, the methodology evolved from group work into a participatory action research process (PAR), as the group initiated action.
• Participants formed a self-help group, and continued to meet with each other after the research had run its course.