• 1
    Coulter A. Paternalism or partnership? Patients have grown up — and there’s no going back. British Medical Journal, 1999; 319 : 719720.
  • 2
    Fraser FC. Genetic counseling. American Journal of Human Genetics, 1974; 26 (5):636661.
  • 3
    Clarke A. Is non-directive genetic counselling possible? Lancet, 1991; 338 : 9981001.
  • 4
    Michie S, Marteau TM, Bobrow M. Genetic counselling: the psychological impact of meeting patients’ expectations. Journal of Medical Genetics, 1997; 34 (3):237241.
  • 5
    Michie S, Bron F, Bobrow M, Marteau TM. Nondirectiveness in genetic counseling: an empirical study. American Journal of Human Genetics, 1997; 60 (1):4047.
  • 6
    Elwyn G, Gray J, Clarke A. Shared decision-making and non-directiveness in genetic counselling. Journal of Medical Genetics, 2000; 37 (2):135138.
  • 7
    Coulter A. Shared decision-making: a summary and future issues. In: Maslin A. (ed.) Breast Cancer. Sharing the Decision. Oxford: Oxford University Press, 1999: 99–108.
  • 8
    Tyler A, Ball D, Craufurd D. Presymptomatic testing for Huntington’s disease in the United Kingdom. British Medical Journal, 1992; 304 : 15931596.
  • 9
    Wiggins S, Whyte P, Huggins M et al. The psychological consequences of predictive testing for Huntington’s disease. Canadian Collaborative Study of Predictive Testing. New England Journal of Medicine, 1992; 327 (20):14011405.
  • 10
    Tibben A, Timman R, Bannink EC, Duivenvoorden HJ. Three-year follow-up after presymptomatic testing for Huntington’s disease in tested individuals and partners. Health Psychology, 1997; 16 (1):2035.DOI: 10.1037//0278-6133.16.1.20
  • 11
    Low L, King S, Wilkie T. Genetic discrimination in life insurance: empirical evidence from a cross sectional survey of genetic support groups in the United Kingdom. British Medical Journal, 1998; 317 : 16321635.
  • 12
    Nelkin D & Lindee MS. The DNA Mystique – the Gene as a Cultural Icon 1st edn. New York: WH Freeman, 1995.
  • 13
    Senior V, Marteau TM, Peters TJ. Will genetic testing for predisposition for disease result in fatalism? A qualitative study of parents responses to neonatal screening for familial hypercholesterolaemia. Social Science and Medicine, 1999; 48 (12):18571860.DOI: 10.1016/s0277-9536(99)00099-4
  • 14
    Axworthy D, Brock DJ, Bobrow M, Marteau TM. Psychological impact of population-based carrier testing for cystic fibrosis: 3-year follow-up. UK Cystic Fibrosis Follow-Up Study Group. Lancet, 1996; 347 : 14431446.
  • 15
    Shiloh S. Decision-making in the context of genetic risk. In: Marteau T & Richards M. (eds) The Troubled Helix: Social and Psychological Implications of the New Human Genetics. Cambridge: Cambridge University Press, 1996: 82–103.
  • 16
    Claus EB, Risch N, Thompson WD. Autosomal dominant inheritance of early-onset breast cancer. Implications for risk prediction. Cancer, 1994; 73 (3):643651.
  • 17
    Emery J, Murphy M, Lucassen A. Hereditary cancer – the evidence for current recommended management. The Lancet Oncology 2000; 1 : 916.
  • 18
    Braddock Iii CH, Edwards KA, Hasenberg NM, Laidley TL, Levinson W. Informed decision-making in outpatient practice: time to get back to basics. Journal of the American Medical Association, 1999; 282 (24):23132320.
  • 19
    Richards M. The new genetics: some issues for social scientists. Social Health and Illness, 1993; 15 (5):567586.
  • 20
    Bottorff JL, Ratner PA, Johnson JL, Lovato CY, Joab SA. Communicating cancer risk information: the challenges of uncertainty. Patient Education and Counselling, 1998; 33 (1):6781.DOI: 10.1016/s0738-3991(97)00047-5