Elaborating patient information with patients themselves: lessons from a cancer treatment focus group
Article first published online: 14 MAY 2003
Volume 6, Issue 2, pages 128–139, June 2003
How to Cite
Moumjid, N., Morelle, M., Carrère, M.-O., Bachelot, T., Mignotte, H. and Brémond, A. (2003), Elaborating patient information with patients themselves: lessons from a cancer treatment focus group. Health Expectations, 6: 128–139. doi: 10.1046/j.1369-6513.2003.00218.x
- Issue published online: 14 MAY 2003
- Article first published online: 14 MAY 2003
- Accepted for publication 9 January 2003
- breast cancer;
- focus group;
- information materials;
- patients' information
Objective To assess the significance of patients' input in the elaboration of a patient information booklet.
Design Qualitative study based on focus group discussions.
Setting Centre Léon Bérard, a comprehensive cancer centre in the Rhône-Alpes region of France.
Participants (1) A multidisciplinary working group (oncologists, health economists and one clinical psychologist) wrote up initial information documents concerning possible breast cancer treatments. (2) A focus group comprised of patients with a history of breast cancer and healthy volunteers discussed their reactions to these documents.
Main outcome measure Analysis of the focus group's reactions according to key themes predetermined by the working group and related themes introduced by the focus group itself.
Results The focus group proposed numerous, significant modifications to answer requests for additional information, clarification and better readability in the information booklets.
Discussion/Conclusions This qualitative analysis showed a significant input of patients' perspective in the elaboration of patient information. It is also an additional support to the feasibility and appropriateness of the focus group technique. The next stage will be to test whether information documents produced here conform to the needs of patients currently undergoing treatment.