Parents’ experiences and expectations of care in pregnancy after stillbirth or neonatal death: a metasynthesis

Authors

  • TA Mills,

    Corresponding author
    1. School of Nursing, Midwifery and Social Work, The University of Manchester, Manchester, UK
    • Correspondence: TA Mills, School of Nursing, Midwifery and Social Work, The University of Manchester, Room 4.334 Jean McFarlane Building, Oxford Road, Manchester, M13 9PL, UK. Email tracey.mills@manchester.ac.uk

    Search for more papers by this author
  • C Ricklesford,

    1. Central Manchester University Hospitals NHS Trust, Manchester, UK
    Search for more papers by this author
  • A Cooke,

    1. School of Nursing, Midwifery and Social Work, The University of Manchester, Manchester, UK
    Search for more papers by this author
  • AEP Heazell,

    1. Central Manchester University Hospitals NHS Trust, Manchester, UK
    2. Maternal and Fetal Health Research Group, Institute of Human Development, The University of Manchester, Manchester Academic Health Sciences Centre, Manchester, UK
    Search for more papers by this author
  • M Whitworth,

    1. Central Manchester University Hospitals NHS Trust, Manchester, UK
    2. Maternal and Fetal Health Research Group, Institute of Human Development, The University of Manchester, Manchester Academic Health Sciences Centre, Manchester, UK
    Search for more papers by this author
  • T Lavender

    1. School of Nursing, Midwifery and Social Work, The University of Manchester, Manchester, UK
    Search for more papers by this author

Abstract

Background

Pregnancy after perinatal death is characterised by elevated stress and anxiety, increasing the risk of adverse short-term and long-term outcomes.

Objectives

This metasynthesis aimed to improve understanding of parents’ experiences of maternity care in pregnancy after stillbirth or neonatal death.

Search strategy

Six electronic databases were searched using predefined search terms.

Selection criteria

English language studies using qualitative methods to explore the experiences of parents in pregnancy after perinatal loss, were included subject to quality appraisal framework.

Data collection and analysis

Searches were initiated in December 2011 and finalised in March 2013. Studies were synthesised using an interpretive approach derived from meta-ethnography.

Main results

Fourteen studies were included in the synthesis, graded A (no or few flaws, high trustworthiness; n = 5), B (some flaws, unlikely to affect trustworthiness; n = 5) and C (some flaws, possible impact on trustworthiness; n = 4). Three main themes were identified; co-existence of emotions, helpful and unhelpful coping activities and seeking reasssurance through interactions.

Conclusion

Parents’ experiences of pregnancy are profoundly altered by previous perinatal death; conflicted emotions, extreme anxiety, isolation and a lack of trust in a good outcome are commonly reported. Emotional and psychological support improves parents’ experiences of subsequent pregnancy, but the absence of an evidence base may limit consistent delivery of optimal care within current services.

Ancillary