The experience of mothers caring for a child with a brain tumour
Article first published online: 13 SEP 2012
© 2012 John Wiley & Sons Ltd
Child: Care, Health and Development
Volume 39, Issue 5, pages 743–749, September 2013
How to Cite
Shortman, R. I., Beringer, A., Penn, A., Malson, H., Lowis, S. P. and Sharples, P. M. (2013), The experience of mothers caring for a child with a brain tumour. Child: Care, Health and Development, 39: 743–749. doi: 10.1111/cch.12005
- Issue published online: 15 AUG 2013
- Article first published online: 13 SEP 2012
- Manuscript Accepted: 20 JUL 2012
- CLIC Sargent
- Bowles Bequest
- brain tumour;
- quality of life
Brain tumours are the second most common form of childhood cancer, accounting for over 20% of all cases in European children. Understanding the impact of diagnosis and treatment of a brain tumour on the family is an essential pre-requisite to identifying ways to provide effective support.
(1) To explore the impact of having a child with a brain tumour on the main caregiver in the family; (2) to describe mothers' experiences of coping with their child's illness, including personal barriers and strengths; and (3) to identify causes of stress and sources of support to inform improvements in care delivery.
Participants were drawn from a group of caregivers enrolled in a longitudinal study of outcome following diagnosis of a childhood brain tumour. Six caregivers took part, two from each of the high-, medium- and low-impact groups based on their Impact on Families Scale scores. Semi-structured interviews were used, with questions covering: (1) impact of the diagnosis on main caregiver and family; (2) personal barriers and strengths; and (3) causes of stress and sources of support. Interviews were transcribed verbatim and coded manually into five themes, which comprised 19 subthemes.
Coping methods and provision of help and support were major preoccupations for main caregivers from all impact groups. Caregivers in the high-impact group reported less conflict. High- and medium-impact group caregivers had experienced less ‘hindrance and heartache’, than those with low impact scores, suggesting that the stress associated with diagnosis and treatment of the tumour may have increased cohesion and acceptance within these families.
Families of children diagnosed with a brain tumour experience considerable negative impact and may perceive themselves as struggling to cope. Provision of help and support, within and outside the extended family, including from health, education and other services, is perceived as helpful.