The QUALA Group includes the following collaborators: Michele Gardiner, Danielle Guimond, Celine Lepage, France Martineau, Kathleen Montpetit and Sylvie Thibault. These individuals assisted with recruitment of participants and were asked to provide feedback on the research proposal and the manuscript submitted for publication.
Rehabilitation service utilization in children and youth with cerebral palsy
Article first published online: 30 JAN 2013
© 2013 John Wiley & Sons Ltd
Child: Care, Health and Development
Volume 40, Issue 2, pages 275–282, March 2014
How to Cite
Majnemer, A., Shikako-Thomas, K., Lach, L., Shevell, M., Law, M., Schmitz, N., Poulin, C. and QUALA Group (2014), Rehabilitation service utilization in children and youth with cerebral palsy. Child: Care, Health and Development, 40: 275–282. doi: 10.1111/cch.12026
- Issue published online: 13 FEB 2014
- Article first published online: 30 JAN 2013
- Manuscript Accepted: 24 OCT 2012
- Cerebral Palsy International Research Foundation, USA
- Canadian Institutes of Health Research
- cerebral palsy;
To describe the pattern of use of rehabilitation services in children and adolescents with cerebral palsy (CP), and to identify factors associated with use.
In this study, parents of 91 school-age children and 167 adolescents with CP completed a questionnaire regarding educational and rehabilitation resources received within the last 6 months. Rehabilitation services included occupational therapy (OT), physical therapy (PT), speech language pathology (SLP), psychology and special education. Demographic characteristics were documented and developmental and functional status was assessed. Relationships between service utilization and sociodemographic factors, functioning and school setting were determined.
Over half of children (53.2%) and adolescents (57.5%) were in regular schools; however, 41% of these required special education resources. The remainder (42.5–46.8%) was in special schools. The majority of children (84.6%) were receiving at least one rehabilitation service although this decreased (68.1%) in adolescence. PT and OT were most common and services were provided predominantly in the school setting. Services were primarily weekly direct interventions at school age, with weekly interventions or consultations most common for adolescents. Younger age was associated with service receipt at school age only. Children with greater motor limitations, lower IQ and greater activity limitations were more likely to receive OT, PT, SLP or special education. Children in segregated schools were significantly more likely to receive rehabilitation services, when compared with children in regular schools.
The majority of children and youth received one or more services. Individuals with greater motor or cognitive challenges were more likely to receive a range of school-based services from rehabilitation specialists. When compared with children of school age, adolescents were less likely to receive services and when provided, services were more likely to be consultative. Services may need to be more optimally organized through childhood to enhance benefits to children with CP across activity limitation profiles.