None of the authors has a conflict of interest in relation to this article.
SOCIAL AND BEHAVIOURAL RESEARCH IN CLINICAL GENETICS
Doing the right thing for one's children: deciding whether to take the genetic test for Huntington's disease as a moral dilemma
Article first published online: 21 MAR 2013
© 2013 John Wiley & Sons A/S. Published by Blackwell Publishing Ltd
Volume 83, Issue 5, pages 417–421, May 2013
How to Cite
Doing the right thing for one's children: deciding whether to take the genetic test for Huntington's disease as a moral dilemma., , , .
- Issue published online: 5 APR 2013
- Article first published online: 21 MAR 2013
- Accepted manuscript online: 25 FEB 2013 11:06AM EST
- Manuscript Revised: 12 FEB 2013
- Manuscript Accepted: 12 FEB 2013
- Manuscript Received: 6 OCT 2012
- University of Sheffield
- genetic test;
- Huntington's disease;
- moral dilemma;
This is a qualitative examination of candidates' decision-making in relation to the genetic test for Huntington's disease. Semi-structured interviews were conducted with nine participants who were asked about factors influencing their decision whether to take up predictive genetic testing. Transcripts of interviews were subjected to interpretative phenomenological analysis to elicit emergent themes. A key factor for participants was to do the right thing for their children. Interestingly, this factor presents a moral dilemma to participants and can direct them either towards or away from testing. This article offers a detailed examination of how participants think through this dilemma.