Time invested in the global respiratory care of cystic fibrosis paediatrics patients

Authors

  • Gaudenz M. Hafen,

    Corresponding author
    1. Department of Paediatrics, Respiratory Unit, Lausanne University Hospital, Switzerland
    • Correspondence

      Gaudenz M. Hafen, MD, Department of Paediatrics, Respiratory Unit, Lausanne University Hospital, Rue Bugnon 46, 1011 Lausanne, Switzerland.

      Tel: +41 79 556 18 25

      Fax: +41 21 314 36 45

      email: gaudenz.hafen@chuv.ch

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  • Yann Kernen,

    1. Department of Paediatrics, Respiratory Unit, Lausanne University Hospital, Switzerland
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  • Quentin M. De Halleux

    1. Department of Paediatrics, Physiotherapy Unit, Lausanne University Hospital, Switzerland
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  • Authorship and contributorship
  • GMH designed study and wrote paper.
  • YK designed study, analysed data and wrote paper.
  • QMDH designed study and analysed data.
  • Ethics
  • The study was approved by the local ethics committee at the University of Lausanne, Switzerland. Informed written consent was obtained by all participants prior to inclusion.
  • Conflict of interest
  • GMH has no conflict of interest.
  • YK has no conflict of interest.
  • QMDH has no conflict of interest.
  • Equal contribution.

Abstract

Introduction

Respiratory therapy is a keystone of the treatment for cystic fibrosis (CF) lung disease, but it is time consuming.

Objectives

We aimed to assess the total time spent on respiratory therapy, including chest physiotherapy (CPT) and physical activity (PA), as well as inhalation therapy (IT) and maintenance of materials (MM) to rationalise and optimise treatment.

Methods

A cross-sectional prospective study in a paediatric CF cohort. A questionnaire was developed to look at the time spent on respiratory care over 3 months. Enrolled in this study are all CF patients aged from 6 to 16 years (the exclusion criterion was lung transplantation).

Results

Of the 40 enrolled patients, 22 participated (13 boys and 9 girls), with a mean age of 11 years. The patients spent approximately 19.46 h per week (standard deviation ± 7.53, 8.00–35.25 h) on therapy: CPT (30.58%), IT (15.11%), PA (50%) and MM (4.32%), without statistical significance between sexes.

Conclusion

In our cohort, CF patients spent an average of nearly 20 h a week in respiratory therapy, within a wide range of between 8 h to almost 36 h a week. PA consumes almost half of the time. Physicians have to take into consideration the burden of the treatment, to optimise the therapy.

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