Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities
Article first published online: 10 JUN 2013
© 2013 Wiley Periodicals, Inc.
Clinical and Translational Science
Volume 6, Issue 4, pages 292–296, August 2013
How to Cite
Wilkins, C. H., Spofford, M., Williams, N., McKeever, C., Allen, S., Brown, J., Opp, J., Richmond, A. and Strelnick, A. H. (2013), Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities. Clinical and Translational Science, 6: 292–296. doi: 10.1111/cts.12072
- Issue published online: 6 AUG 2013
- Article first published online: 10 JUN 2013
- National Center for Research Resources and NCATS
- Clinical and Translational Science Awards Program (CTSA). Grant Numbers: UL1 TR000445, UL1 TR000128, UL1 TR000448, UL1 TR000124, UL1 TR000170, UL1 TR000150, UL1 TR000165, UL1 TR000083, UL1 RR025750-04S2
- community engagement;
- community-engaged research;
- translational research
To understand the formal roles of community representatives (CRs) in Clinical and Translational Science Awardee (CTSA) activities, to evaluate the extent of integration into the organizational and governance structures and to identify barriers to effective integration.
The inventory tool was distributed to each of the 60 CTSAs using a secure web application.
Forty-seven (78%) completed the inventory. The mean number of CRs per CTSA is 21.4 (SD: 14.8). Most CTSAs had community advisory boards (89%) and 94% included CRs in Community Engagement (CE) cores. Only 11% reported a CR being a member of the CTSA leadership team and 19% reported that CRs advise core programs beyond CE.
CRs are compensated by 79% of CTSAs. Mean annual compensation is $753 (median: $400). Compensation directly correlated with the number of hours that CRs worked in CTSA activities (r = 0.64; P = 0.001).
This inventory allows CTSAs to better understand how CRs have engaged in activities and brings attention to the limited representation among cores and in leadership roles. CTSAs should, with substantive input from CRs, develop strategies to provide the resources and compensation necessary to better integrate the community in CTSA activities and fully realize the goals of the CTSA vision.