Conflict of interest statement: No conflicts declared
‘She's My Sister-In-Law, My Visitor, My Friend’ – Challenges of Staff Identity in Home Follow-Up in an HIV Trial in Western Kenya
Version of Record online: 22 MAR 2013
© 2013 Blackwell Publishing Ltd
Developing World Bioethics
Special Issue: Field workers at the interface between research institutions and local communities
Volume 13, Issue 1, pages 21–29, April 2013
How to Cite
Madiega, P. A., Jones, G., Prince, R. J. and Geissler, P. W. (2013), ‘She's My Sister-In-Law, My Visitor, My Friend’ – Challenges of Staff Identity in Home Follow-Up in an HIV Trial in Western Kenya. Developing World Bioethics, 13: 21–29. doi: 10.1111/dewb.12019
- Issue online: 22 MAR 2013
- Version of Record online: 22 MAR 2013
- 1See e.g. 2004. HIV and AIDS in Africa: beyond epidemiology. Oxford: Blackwell., , et al.
- 2See Ethical, methodological and political issues of AIDS research in Central Africa. SocSciMed 1991; 33(7): 749–763; “International AIDS Research in Anthropology: Taking a Critical Perspective on the Crisis. Annual Review of Anthropology 2001; 30: 335–361; Rethinking HIV exceptionalism: the ethics of opt-out HIV testing in sub-Saharan Africa. Bulletin of the World Health Organisation 2010; 88: 703–708..
- 3Rumours about blood and reimbursements in a microbicide gel trial. African Journal of AIDS Research 2011; 9(4): 345–353; Health workers entangled: confidentiality and certification. In: Morality, Hope and Grief. Anthropologies of AIDS in Africa. H.J. Dilger & U. Luig (eds). Oxford: Berghahn, pp. 80.101.& .
- 5Trust and informed consent: insights from community members on the Kenyan Coast. SocSciMed 2005; 61: 1463–1473; Where techno-science meets poverty: medical research and the economy of blood in The Gambia, West Africa. Soc Sci Med 2006; 63(4): 1109–1120; ‘He is now like a brother, I can even give him some blood’ – relational ethics and material exchanges in a malaria vaccine ‘trial community’ in The Gambia. SocSciMed 2008; 67(5): 696–707; Taking social relationships seriously: Lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast. SocSciMed 2008; 67(5): 708–720. ‘Like Sugar and Honey’: The embedded ethics of a larval control project in The Gambia, SocSciMed 2010; 70(12): 1912–1919., , et al.
- 7Through training opportunities provided by the research organisation all follow-up staff obtained diploma level in subjects such as community health and counselling during the course of the study.
- 8Names and circumstances have been changed for anonymity. Agwata's story is a composite of several stories.
- 9Kachinja are coming: Encounters around a medical research project in a Kenyan village. Africa 2005; 75(2): 173–202; Popular concerns with medical research projects in Africa – a critical voice in debates about overseas research ethics. Trop Med Int Health 2006; 11(7): 975–982; note 5; & op. cit. note 3..
- 12Ibid. See 2010. The Land is Dying. Contingency, Creativity and Conflict in Western Kenya. Oxford, New York: Berghahn; , and trespasses: land, mortgages and the ancestors in western Kenya. Africa 1992; 62(3): 357–388.& .
- 13See e.g. 2011. Studying Trial Communities: Anthropological and Historical Inquiries into Ethos, Politics and Economy of Medical Research in Africa. In: Evidence, Ethos and Ethnography: The Anthropology and History of Medical Research in Africa. P. W. Geissler and C. Molyneux (eds). Oxford: Berghahn: 1–28.et al. op.cit.; et al. op.cit.; et al. op.cit; et al. op.cit.); .
- 142011. Remember Bambali: Evidence, Ethics and the Co-production of Truth. In: Evidence, Ethos and Ethnography: The Anthropology and History of Medical Research in Africa. P. W. Geissler and C. Molyneux (eds). Oxford: Berghahn: 229–244.,
- 15See e.g. 2008, op.cit.et al.