dmcn12119-sup-0001-FileS1.xlsapplication/msexcel20KFile SI: Hurdles in outcome measure selection and development in paediatric mitochondrial disease.
dmcn12119-sup-0002-FileS2.xlsapplication/msexcel11KFile SII: Consequences of the lack of consensus regarding outcome measures.
dmcn12119-sup-0003-FileS3.tifimage/tif5488KFile SIII: Search strings and number of results. The selected symptoms/chapters from the ICF-CY are listed in bold, and the search string that was used is shown below each symptom/chapter. The number of results obtained from PubMed using this symptom/domain search string in combination with the paediatric and outcome string is indicated at the right. Because only the first 200 abstracts were reviewed for each symptom, we list the year of the oldest article that was reviewed. If a scale had multiple scales for different age groups, only one scale was counted. The number of instruments that were found in addition to those identified by the PubMed search, and the number of additional instruments found on are listed; finally, the total number of instruments and the number of excluded and included instruments are indicated. Note: quality of life questionnaires specifically designed for an irrelevant disease (e.g. respiratory disease) are not included in this number.
dmcn12119-sup-0004-FileS4.docWord document78KFile SIV: References cited in Supplementary File V.
dmcn12119-sup-0005-FileS5.pdfapplication/PDF222KFile SV: Systematic overview of the outcome measures with good face validity for mitochondrial diseases.
dmcn12119-sup-0006-DataS1.docWord document83KData S1: Supplementary information.
dmcn12119-sup-0007-TableS1.xlsapplication/msexcel149KTable S1: Supplementary table.

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