Concepts of functioning and health important to children with an obstetric brachial plexus injury: a qualitative study using focus groups
Article first published online: 16 OCT 2013
© 2013 Mac Keith Press
Developmental Medicine & Child Neurology
Volume 55, Issue 12, pages 1136–1142, December 2013
How to Cite
Sarac, C., Bastiaansen, E., Van der Holst, M., Malessy, M. J. A., Nelissen, R. G. H. H. and Vliet Vlieland, T. P. M. (2013), Concepts of functioning and health important to children with an obstetric brachial plexus injury: a qualitative study using focus groups. Developmental Medicine & Child Neurology, 55: 1136–1142. doi: 10.1111/dmcn.12270
- Issue published online: 12 NOV 2013
- Article first published online: 16 OCT 2013
- Manuscript Accepted: 16 JUL 2013
The aims of this study were to explore and understand the perspectives of children with an obstetric brachial plexus injury (OBPI) regarding functioning and health, and to create an overview of problems and difficulties that patients encounter in daily life.
We conducted a focus group study with 48 children (25 male, 23 female), aged 8 to 18 years, with an OBPI. Eleven open-ended questions regarding problems or difficulties in daily life were asked in group sessions with 4 to 7 children within the same age range. These group sessions were tape-recorded and transcribed verbatim. All problems and difficulties mentioned in each focus group were linked to corresponding categories of the International Classification of Functioning, Disability and Health – Children & Youth Version (ICF-CY).
Eight focus groups were conducted. A total of 143 unique ICF-CY categories were identified. Of these categories, 61 (43%) were related to the ICF-CY component ‘activities and participation’, 31 (22%) were related to ‘body functions’, 29 (20%) were related to ‘environmental factors’, and 22 (15%) were related to ‘body structures’.
This study shows that children with OBPI experience difficulties in all areas of functioning, as well as in both environmental and personal factors.