What are the needs of adolescents and young adults after a cancer treatment? A Delphi study

Authors

  • S. Galán MSc,

    Psychologist, Doctoral Student
    1. Unit for the Study and Treatment of Pain – ALGOS, Catalonia, Spain
    2. Department of Psychology, Research Center for Behavior Assessment (CRAMC), Universitat Rovira i Virgili, Catalonia, Spain
    3. Institut d'Investigació Sanitària Pere Virgili, Universitat Rovira i Virgili, Catalonia, Spain
    Search for more papers by this author
  • R. de la Vega PhD,

    Postdoctoral Fellow
    1. Unit for the Study and Treatment of Pain – ALGOS, Catalonia, Spain
    2. Department of Psychology, Research Center for Behavior Assessment (CRAMC), Universitat Rovira i Virgili, Catalonia, Spain
    3. Institut d'Investigació Sanitària Pere Virgili, Universitat Rovira i Virgili, Catalonia, Spain
    Search for more papers by this author
  • C. Tomé Pires PhD,

    Postdoctoral Fellow
    1. Unit for the Study and Treatment of Pain – ALGOS, Catalonia, Spain
    2. Department of Psychology, Research Center for Behavior Assessment (CRAMC), Universitat Rovira i Virgili, Catalonia, Spain
    3. Institut d'Investigació Sanitària Pere Virgili, Universitat Rovira i Virgili, Catalonia, Spain
    Search for more papers by this author
  • M. Racine PhD,

    Postdoctoral Fellow
    1. Lawson Health Research Institute, London, ON, Canada
    2. Beryl & Richard Ivey Rheumatology Day Programs, St. Joseph's Health Care, London, ON, Canada
    3. Clinical and Neurological Sciences Department, Schulich School of Medicine & Dentistry, University of Western Ontario, London, ON, Canada
    Search for more papers by this author
  • E. Solé PhD,

    Postdoctoral Fellow
    1. Unit for the Study and Treatment of Pain – ALGOS, Catalonia, Spain
    2. Department of Psychology, Research Center for Behavior Assessment (CRAMC), Universitat Rovira i Virgili, Catalonia, Spain
    3. Institut d'Investigació Sanitària Pere Virgili, Universitat Rovira i Virgili, Catalonia, Spain
    Search for more papers by this author
  • M.P. Jensen PhD,

    Professor
    1. Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA
    Search for more papers by this author
  • J. Miró PhD

    Professor and Director, Chair in Pediatric Pain URV-Fundación Grünenthal, Corresponding author
    1. Unit for the Study and Treatment of Pain – ALGOS, Catalonia, Spain
    2. Department of Psychology, Research Center for Behavior Assessment (CRAMC), Universitat Rovira i Virgili, Catalonia, Spain
    3. Institut d'Investigació Sanitària Pere Virgili, Universitat Rovira i Virgili, Catalonia, Spain
    • Correspondence address: Jordi Miró, Departament de Psicología, Universitat Rovira i Virgili, Carretera de Valls, s/n. 43007 Tarragona, Spain (e-mail: jordi.miro@urv.cat).

    Search for more papers by this author

Abstract

Advances in the early detection of cancer and the development of more effective treatments have resulted in a larger number of adolescents and young adults (AYAs), becoming cancer survivors. However, knowledge regarding their needs and if those needs are adequately addressed remains limited. The aims of this study were to: (1) better understand the needs of AYAs after cancer treatment; (2) analyse the importance of those needs; (3) determine which needs are not adequately addressed; and (4) test the hypothesis that AYA cancer survivors have different needs than adult survivors. Twenty-nine health oncology professionals, 17 AYA survivors and 12 relatives of AYA survivors participated in the Delphi study. The needs identified could be classified into six categories, and all were rated as highly important by all participants. The category perceived as least adequately addressed across the three groups was ‘Counselling and psychological support.’ The findings provide important new information regarding the needs of AYA cancer survivors that can inform the development of interventions to improve the quality of life of these individuals.

Ancillary