• Anderson, L., Larson, S., Lakin, K. C., & Kwak, N. (2002). Children with disabilities: Social roles and family impacts in the NHIS-D. DD Data Brief, 4, 1.
  • Eiken, S., Sredl, K., Burwell, B., & Gold, L. (2010). Medicaid long term care expenditures, FY 2009. Cambridge, MA: Thomson Reuters.
  • Feinberg, L., Reinhart, S., Houser, A., & Choula, R. (2011). Valuing the invaluable: 2011 update, the growing contributions and costs of family caregiving. Washington, DC: AARP Policy Institute.
  • Fujiura, G., Roccoforte, J., & Braddock, D. (1994). Costs of family care for adults with mental retardation and related developmental disabilities. American Journal on Mental Retardation, 99, 250261.
  • Hall, E. (2010). Spaces of social inclusion and belonging for people with intellectual disabilities. Journal of Intellectual Disability Research, 54, 4857.
  • Houtenville, A., Ruiz, T., Brucker, D., Gould, P., Guntz, N., Gianino, M., … Laurer, E. (2012). 2012 annual disability statistics compendium. Durham, NH: University of New Hampshire, Research and Training Center on Disability Statistics and Demographics.
  • Gotto, G., Calkins, C., Jackson, L., Walker, H., & Beckmann, C. (2010). Accessing social capital: Implications for persons with disabilities, a White Paper. American Association of University Centers on Disability, National Gateway to Self Determination. Retrieved from
  • Johnson, C., & Kastner, T. (2005). Helping families raise children with special health care needs at home, Pediatrics, 115, 507511.
  • Olmstead et al. v. L.C. et al., 527 U.S. 581 (1999).
  • Parish, S., Seltzer, M., Greenberg, J., & Floyd, F. (2004). Economic implications of caregiving at midlife: Comparing parents with and without children with developmental disabilities. Mental Retardation, 42, 413426.
  • Pineles, N. (2005). Permanency planning for adolescents with disabilities. ABA Child Law Practice, 24, 113122.
  • Sunstein, C., & Thaler, R., (2008). Nudge: Improving decisions about health, wealth, and happiness. New York: Penguin.
  • Swenson, S. (2008). Neoliberalism and human services: Threat and innovation. Journal of Intellectual Disability Research, 52, 626633.
  • U.S. Census Bureau. (2012). Projections of the population by selected age groups and sex for the United States: 2015 to 2060 (Table 2). In 2012 National Population Projections: Summary Tables. Washington, DC: Author. Retrieved from
  • White-Means, S., & Dong, Z. (2012). Valuing the costs of family caregiving: Time and motion survey estimates. Consumer Interests Annual, 58, 16.