SEARCH

SEARCH BY CITATION

References

  • 1
    National Health & Medical Research Council and Consumers_ Health Forum of Australia. Statement on consumer and community participation in health and medical research. Available at: http://www.nhmrc.gov.au/ _files_nhmrc/publications/attachments/r22.pdf, accessed 31st July 2012.
  • 2
    Department of Health. Research Governance Framework for hEalth and Social Care, 2nd edn. London: Department of Health, 2005.
  • 3
    National Institute for Health Research. Patients and public. Available at: http://www.crncc.nihr.ac.uk/ppi, accessed 31st July 2012.
  • 4
    Canadian Institutes of Health Research. Citizen engagement framework. Available at: http://www.cihr-irsc.gc.ca/e/41753.html, accessed 31st July 2012.
  • 5
    National Institute for Health Research. Patient and public involvement: information for researchers. Available at: http://www.crncc.nihr.ac.uk/about_us/ccrn/cdtv/PPI/PPI_Researchers, accessed 6 February 2012.
  • 6
    Boote J, Baird W, Beecroft C. Public involvement at the design stage of primary health research: a narrative review of case examples. Health Policy, 2010; 95: 1023.
  • 7
    Beresford P. Developing the theoretical basis for service user/survivor-led research and equal involvement in research. Epidemiologia e Psichiatria Sociale, 2005; 14: 49.
  • 8
    Thompson J, Barber R, Ward PR et al. Health researchers' attitudes towards public involvement in health research. Health Expectations, 2009; 12: 20920.
  • 9
    Boote J. Patient and public involvement in health and social care research: a bibliography. Available at: http://www.rds-yh.nihr.ac.uk/_file.ashx?id=3959, accessed 12 September 2012.
  • 10
    Staniszewska S, Herron-Marx S, Mockford C. Measuring the impact of patient and public involvement: the need for an evidence base. International Journal for Quality in Health Care, 2008; 20: 3734.
  • 11
    Wright MT, Roche B, Von Unger H, Block M, Gardner B. A call for an international collaboration on participatory research for health. Health Promotion International, 2009; 25: 115122.
  • 12
    Staley K. Exploring Impact: Public Involvement in NHS, Public Health and Social Care Research. Eastleigh: INVOLVE, 2009. Available at: http://www.invo.org.uk/pdfs/Involve_Exploring_Impactfinal28.10.09.pdf, accessed 12 September 2012.
  • 13
    Smith E, Ross F, Donovan S et al. User Involvement in the Design and Undertaking of Nursing, Midwifery and Health Visiting Research. London: NCCSDO, 2005.
  • 14
    Oliver S, Clarke Jones L, Rees R et al. Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Health Technology Assessment Monographs, 2004; 8: 1148.
  • 15
    Brett J, Staniszewska S, Mockford C, Seers K, Herron-Marx S, Bayliss H. The PIRICOM Study: A Systematic Review of the Conceptualisation, Measurement, Impact and Outcomes of Patients and Public Involvement in Health and Social Care Research. London: UK Clinical Research Collaboration, 2010. Available at: http://www.ukcrc.org/index.aspx?o=3233, accessed 12 September 2012.
  • 16
    Nilsen ES, Myrhaug HT, Johansen M, Oliver S, Oxman AD. Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database Systematic Review, 2006, Issue 3. Art. No.: CD004563. doi: 10.1002/14651858.CD004563.pub2.
  • 17
    Boote J, Baird W, Sutton A. Public involvement in the design and conduct of clinical trials: a review. The International Journal of Interdisciplinary Social Sciences, 2011; 5: 91111.
  • 18
    Boote J, Baird W, Sutton A. Public involvement in the systematic review process in health and social care: a narrative review of case examples. Health Policy, 2011; 102: 105116.
  • 19
    Wright MT, Gardner B, Roche B, Von Unger H, Ainlay C. Building an international collaboration on participatory health research. Progress in Community Health Partnerships: Research, Education, and Action, 2010; 4: 3136.
  • 20
    Boote J, Telford R, Cooper C. Consumer involvement in health research: a review and research agenda. Health Policy, 2002; 61: 21336.
  • 21
    Green LW, George MA, Daniel M, Frankish CJ, Bowie WR. Study of Participatory Research in Health Promotion. Ottowa: Royal Society of Canada, 1992.
  • 22
    Rapoport R. Three dilemmas in action research. Human Relations, 1970; 33: 488543.
  • 23
    Smith SE, Pyrch T, Lizardi AO. Participatory action-research for health. World Health Forum, 1993; 14: 319324.
  • 24
    Fals-Borda O. Evolution and convergence in participatory action-research. In: Frideres JA, (ed.) A world of Communities: Participatory Research Perspectives. Toronto: Captus University Publications, 1992: 1419.
  • 25
    Giebrecht N, Rankin J. Reducing alcohol problems through community action research projects: contexts, strategies, implications and challenges. Substance Use and Misuse, 2000; 35: 3153.
  • 26
    INVOLVE. About us. Available at: http://www.invo.org.uk/About_Us.asp, accessed 31st July 2012.
  • 27
    INVOLVE Evidence Library. Available at: http://www.invo.org.uk/resource-centre/evidence-library/, accessed 31st July 2012.
  • 28
    Viswanathan V, Eng E, Gartlehner G et al. Community-based Participatory Research (CBPR): Assessing the Evidence. Evidence Report/Technology Assessment No. 99. Roackville, MD: Agency for Healthcare Research and Quality, 2004.
  • 29
    Cook WC. Integrating research and action: a systematic review of community- based participatory research to address health disparities in environmental and occupational health in the United States. Journal of Epidemiology and Community Health, 2008; 62: 668676. doi:10.1136/jech.2007.067645.
  • 30
    Nykiforuka CIJ, Oslera GE, Viehbeck S. The evolution of smoke-free spaces policy literature: a bibliometric analysis. Health Policy, 2010; 97: 17.
  • 31
    Peckham M. Consumers and research in the NHS: foreword. In: Consumers in the NHS: an R & D Contribution to Consumer Involvement in the NHS. London: Department of Health, 1995: 230.
  • 32
    National Institutes of Health. History of NIH director's council of public representatives. Available at: http://copr.nih.gov/about/history, accessed 31st July 2012.
  • 33
    North American Primary Care Research Group. Responsible research with communities: participatory research in primary care. Available at: http://www.views/fap/napcrg 98/policy.html, accessed 31st July 2012.
  • 34
    Matrice D, Brown V, editors. Widening the Research Focus: Consumer Roles in Public Health Research. Report of the National Workshop on Consumer Participation In and Input Into Public Health Research. Curtin: Health Forum of Australia Inc; 1992.
  • 35
    Wills P. The Virtuous Cycle: Working Together for Health and Medical Research. (Final Report of the Health and Medical Research Strategic Review.) Canberra: Commonwealth of Australia, 1999.
  • 36
    Department of Health. Research and Development for a First Class Service. London: Department of Health, 2000.
  • 37
    Community-based Research Canada. Who are we. Available at: http://communityresearchcanada.ca/?action=news. accessed 31st July 2012.
  • 38
    International Collaboration for Participatory Health Research. Mission. Available at: http://www.icphr.org/mission, accessed 31st July 2012.
  • 39
    International Collaboration for Participatory Health Research (ICPHR). Available at: http://www.icphr.org/, accessed 12 September 2012.
  • 40
    EQUATOR. Available at: http://www.equator-network.org/home/, accessed 31st July 2012.